Story

My story

Thanks for taking the time to visit my JustGiving page.

My Amazing sister-in-law Sam was diagnosed with Pompe Disease - a form of Glycogen Storage Disease - in february 2010.  Glycogen Storage Disease is caused by a defective gene. People with Pompe Disease lack the enzyme that breaks down glycogen into glucose. Without this enzyme, glycogen, a thick sticky substance, accumulates within the muscle cells and leads to muscle weakness and breathing problems that worsen over time. Although it mainly affects the skeletal and respiratory muscles, in children it can also affect the heart.

I am Absailing the Spinnaker Tower in Portsmouth to help raise money & awareness for AGSD, which is a brilliant charity who offer support and guidance, as well as help with funding & sponsorship for research, studies, and trials towards treatments.  AGSD have done so much to help Sam who despite this debilitating disease never fails to amaze me with the things she achieves for herself, her family and her beautiful little girl Poppy.

It goes without saying that any donation you can make will be massively appreciated.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity and make sure Gift Aid is reclaimed on every single donation by a UK taxpayer. So its the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

Thanks again for listening.

Updates 2

Just updated my offline fundraising, great effort from the guys at work :)

15/06/13 10:19

Amazing day...nearly there !!! Thank you so much for all the friends and family who have given so much already :)

08/05/13 22:11

Raising money for

Association for Glycogen Storage Disease (UK) Ltd

Association for Glycogen Storage Disease (UK) Ltd

Charity Registration No. 1132271

Support group for people with glycogen storage diseases, very rare genetic disorders of metabolism, and their families. We offer: web site, newsletter, annual conference/workshops, promote understanding of and research into GSDs which are often disabling and life-limiting. http://www.agsd.org.uk

Donations 19

Good Luck Daddy, so pleased it got delayed as now I get to watch you. lots of love baby daisy do do xx

Donation by Anonymous on 14/07/13

£5.00

+ £1.25 Gift Aid

Good Luck DAve, love Jenny

Donation by Jenny Murduck on 14/07/13

£50.00

+ £12.50 Gift Aid

Good luck Dave!!! I'm kinda jealous!! Enjoy the experience

Donation by Stu Oakley on 22/06/13

£20.00

+ £5.00 Gift Aid

Good luck bro:-)xx

Donation by Neill burton on 22/06/13

£5.00

+ £1.25 Gift Aid

Hope it's not too windy! :-P Have fun bro, good luck xxx

Donation by Martin Burton on 21/06/13

£5.00

+ £1.25 Gift Aid

have a good day son , love mam &dad

Donation by Anonymous on 21/06/13

£5.00

+ £1.25 Gift Aid

Good luck you crazy man. Love the wards

Donation by Helen on 21/06/13

£10.00

+ £2.50 Gift Aid

Good luck x

Donation by Kathryn on 21/06/13

£5.00

+ £1.25 Gift Aid

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Ill watch out for a man falling down the tower on the news mate,no I mean abseiling sorry about that

Donation by Daniel Williams on 10/05/13

£10.00

+ £2.50 Gift Aid

Donation by Anonymous on 09/05/13

£10.00

+ £2.50 Gift Aid

Good luck dave, sure you will have lots of fun and for an amazing cause! Lots of love the Newells xxx

Donation by Newell family on 09/05/13

£10.00

+ £2.50 Gift Aid

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Good luck dave xx

Donation by Sam Davies on 08/05/13

£10.00

+ £2.50 Gift Aid

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Great cause Dave - Good Luck Louise and Rich xxx

Donation by Louise Auty on 08/05/13

£10.00

+ £2.50 Gift Aid

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Good Luck! :)

Donation by Samantha Oatway on 08/05/13

£10.00

+ £2.50 Gift Aid

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Hi Dave, Good Luck, Love from Sue & Mike xx

Donation by Susan Fagg on 08/05/13

£20.00

+ £5.00 Gift Aid

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Good Luck Fellas!! Lots of Love Emma, Steve, Alix, Louis and Max Xxxxx

Donation by Emma Richardson on 08/05/13

£10.00

+ £2.50 Gift Aid

Go Dave! Thanks for doing this, you'll have a great time. Good luck. Love Sam, Stu and Poppy xxx

Donation by Sam Murduck on 19/03/13

£40.00

+ £10.00 Gift Aid

Hope you dont get vertigo dear!!!!!! Love you, thanks for doing this for Sam, (and allowing me to get out of doing it !! ) xxxx

Donation by Lauren Burton on 08/02/13

£50.00

+ £12.50 Gift Aid

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Donation by Sue Muller on 27/01/13

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£305.00
  • Offline donations£60.00
  • Text donations£0.00
  • Total raised£365.00
  • Gift Aid£76.25

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