My name is David Rose. What follows is a newspaper article that appeared in July 2009. It explains my story better than I ever could. Whatever you are able to give will go towards fighting MYELOMA ( bone marrow cancer). Many thanks : -
" Life was in full swing when David Rose was given
the devastating news he had incurable bone cancer. But with typical humour,
optimism and charm, and the loving support of family and friends, he is getting
the most out of the time he has left, as KATE CLARKE discovered.
AS
a golfer and one of life's achievers,you might not think trailing badly to
defeat in six consecutive golf tournaments would be moments of sweet victory for
David Rose. But
for the former head teacher of Maesydderwen comprehensive, who had been struck
down with a rare type of bone cancer, those wearying games signalled a positive
chapter in his battle against the disease that will eventually kill
him. Fifty-eight-year-old
David lives a stone's throw from Pennard Golf Course, but after being diagnosed
with multiple singular plasmacytoma when he was 55, he was told he wouldn't get
much more use out of his clubs.
"The
oncologist said 'it's highly unlikely you will ever play golf again' and I said
'you don't know me very well, do you?'" The
oncologist's wariness was understandable. David was diagnosed with the rare
cancer after tests on his leg and shoulder revealed the inner core of the bone
was just mush and the outer shell was, literally,
shell-thin.
Another
biopsy followed. "The consultant said 'I have got some good news and some bad
news. You've got incurable bone marrow cancer." "And
I thought, 'Well, how can there possibly be any good news?'" laughed David. "He
said 'Though we can't cure you, we can slow it down.'" Three
punishing weeks of radiation treatment followed and David became part of a
national trial for experimental treatment. "That's
when I began the chemo, three cycles that were finished before Christmas 2006,"
he said.
During
the treatment, David's immune system took a battering. After those initial
courses the father-of-five was admitted into hospital for tougher
treatment. "I
burst out laughing when they said 'Now for the intensive chemo'. I had gone
through all this treatment and now you are going to bring me in for
intensive?
"I
was injected twice a day by my wife in the stomach to promote the development of
normal cells.
"Then
they took them to Cardiff to have the stem cells harvested and I was put into an
isolation unit in Singleton for a stem cell transplant."
He
said: "The final intensive dose of chemo destroys your whole immunity. By
reintroducing your own stem cells they hope it will stop the cancer
re-establishing itself." David's sporty lifestyle and his fitness stood him in
good stead. "The
stronger you are, the closer to the brink they can take
you."
Photos
at that point reveal him as puffy, pale, with little hair and looking 15 years
older than the slim, athletic figure he is now. David
was in isolation for four weeks, with his nurse and his wife Rose his only
visitors. It
was a tense time for all the family, and one from which he made a painstaking
recovery.
And
he talks about that time now, surrounded by family photos and good wishes cards
with emotion in his voice. "I
would like to thank people who are totally unaware of what they have done for me
- blood donors, for one. "At
3 a.m. one cold February morning the nurse came in and gave me a blood
infusion. "I
became quite emotional on my own in that room because somebody would have
gone in quietly and given blood, not aware of the impact it was going to have,
it was saving my life."
Once
the initial danger had passed David was allowed home, a shadow of his former
self. "I
remember standing at the bottom of the stairs, looking up and thinking 'I'm
never going to be able to get to the top of those stairs'. "But
I gradually managed it. Then from here to the gate. Then my wife would take me
for a walk along the front. Then I walked my first hole of the golf course. Then
three, then nine, then 18 holes and then I played golf for first
time. "It
was such a sense of victory. And even those terrible scores were
fantastic."
Aside
from the time away from his sporting life there are other losses which David
feels more keenly.
"I
missed my daughter's graduation because I was in
hospital." "I
see the cancer as the enemy. I'm fighting off the beast. The enemy stopped me
doing the job I wanted to do at Maesydderwen."
When
David took up the head's role at the Ystradgynlais school he started a plan to
rebuild the blocks. It was a labour of love which he wasn't able to enjoy :
-
"The
cancer stopped me finishing what I had started. I was struck down in July. The
new block was due to open in September." But the school held off the official
opening until David came out of hospital and, though in very bad shape, he made
it to Maesydderwen for an emotional reunion with the
children. "One
of the hardest things I've ever had to do was to give my final assembly. I had
lost all my hair and I wasn't really strong enough. "I
didn't want to go to the opening and press the flesh and not have time to talk
to the kids, so they arranged a special assembly."
David
gave a speech, even though he couldn't stand for long. "The
essence of what I said was that I had never come across a child who was bad. I
had come across bad behaviour, I had come across children who had been treated
badly. "I
said 'When you look at yourself in the mirror after being in trouble
just
remember, you are not bad.
"Rise
through whatever is happening to you and respect yourself.'" David
takes a quiet moment to remember the scene. "As
I got up to go there was a huge ovation."
He
says leaving the pupils was one of the cruellest blows that his cancer dealt
him. He
says it is the psychic rewards that keep teachers motivated. Now
he gets those rewards solely from his family and the milestones he is determined
to mark with them. He
and Rose have instilled a work ethic and a love of education into their own
children, who are pursuing careers in education, law and children's services.
And, of course, there are weddings to look forward to. During
his recovery David was able to
walk one daughter down the aisle and another, Katie, is planning her wedding for
next July. "That is
something else I am determined to enjoy and, if it hadn't have been for this
treatment, I would not have been able to enjoy," he added. "Another
son married last September, so I was able to see his wedding. My
youngest daughter has just got a 2:1 in Welsh and we are going to her graduation
next week."
But,
understandably, David mourns for his previous life : "I grieve for the health I
had, for the person I was. It was emotionally a very traumatic time :
"I
would get up at 3am, walking the house in turmoil and I would
look over my shoulder and Rose would be behind me. "She
was the emotional rock I was able to fall back on."
And
now as healthy and as energetic as he expects to be, David is using his love of
golf to raise money to fight the disease.
He
is calling on Welsh clubs to donate
rounds of golf. "I
only started 10 days ago and
I've had half a dozen who have donated
free rounds of golf and the proceeds can go to Myeloma UK." Some
of the funds will also go to the Leukaemia and Lymphoma
Fund of Wales, based at Singleton Hospital.
It
has been sport, he believes, that has given him the rules of engagement with his
cancer.
"I'm
determined it's not going to get the better of me.
"One
of the things sport has taught me is how to get a perspective on success and
also how to handle defeat.
"The
best result I can get from this match is a goalless draw," he
laughed.
"But
I'm determined to go into extra time."
© South Wales Evening Post