Dearbhla Keenan

Dearbhla's page

Fundraising for The SMA Trust
€862
raised
by 12 supporters
Donations cannot currently be made to this page
In memory of Rowan Macie Poole
The SMA Trust

Verified by JustGiving

RCN 1097765
We fund research into SMA to help find a cure and treatments

Story

Thanks for taking the time to visit my JustGiving page.

Brian and I are doing a 17mile walk over the Yorkshire Moors on May 26th. Our Great friend Xanah was unfortunate to suffer a loss last winter that was heartbreaking for her and her close friend Sarah Poole. Baby Rowan was born with SMA and unfortunately we lost her at only 18 months. This would have been the 2nd birthday of Rowan, a little girl that we never met however through our friend Xanah we met Rowan's Mum Sarah Poole and her strength and bravery inspired us to join Team Rowan and raise money for The SMA Trust. It will go towards Research among many other beneficial things like raising awareness about this genetic disorder. 

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So please dig deep and donate now.

About the charity

The SMA Trust

Verified by JustGiving

RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Donation summary

Total raised
€862.00
Online donations
€862.00
Offline donations
€0.00

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