Our beautiful little friend Rowan Macie Poole peacefully lost her brave fight with Spinal Muscular Atrophy Type 1B at just 18 months old on 23rd November 2012.

SMA is the UK's biggest genetic killer of children under the 2 years old and currently there is no cure, however the SMA Trust are working with scientists to find one. There is a small glimmer of hope with several therapies entering or approaching clincal trials in humans.

To support the work of the SMA Trust and in memory of Rowan I am taking part in a 17 mile sponsored walk from Denby Dale (where Rowan lived) to Dovestones Resevoir (where Rowan's ashes have been planted in the memorial forest and where she enjoyed walks with her mummy and daddy) on Sunday 26th May 2013 on what would have been her 2nd Birthday.

The walk has been organised by Julie Elliot and here is a link to a recent news article: http://www.examiner.co.uk/news/local-west-yorkshire-news/2013/02/27/huddersfield-couple-devastated-after-daughter-s-death-from-rare-disease-86081-32886969/

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