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Newcomers to Halstead

Diane Bettley is raising money for Multiple System Atrophy Trust
“Diane Bettley's fundraising”

on 1 August 2011

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The Multiple System Atrophy Trust is the UK and Ireland's only charity dedicated to providing specialist support to all those affected by multiple system atrophy (MSA); a life-limiting neurodegenerative condition. We rely entirely on voluntary donations to provide our free support services.

Story

<p>&nbsp;</p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">NEWCOMERS TO HALSTEAD</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">&ldquo;I hope you&rsquo;ve been made welcome&rdquo; .</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;"><span style="mso-spacerun: yes;">&nbsp;</span>This was the start of our conversation when we first met David<span style="mso-spacerun: yes;">&nbsp; </span>Hume, the Mayor of Halstead. To be frank, it was with great trepidation that we had made the move to Halstead from our home of forty years in Warrington in the North-West of England. This decision ,to be near our son and his family, was prompted by my diagnosis of Parkinson&rsquo;s<span style="mso-spacerun: yes;">&nbsp; </span>Disease and the fact that we were both only children and therefore had no family back up in Warrington.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">We need not have worried., everyone was immediately friendly, even if it did take three years to sell our house and gain the planning permission to build<span style="mso-spacerun: yes;">&nbsp; </span>across the road from our son., and another year to move in to our new bungalow built with disability in mind.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;"><span style="mso-spacerun: yes;">&nbsp;&nbsp; </span>We joined the church of St .Andrew&rsquo;s choir, and felt much warmth and friendship from both the choir and those in the church community.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">The set up of the many different village communities, with Halstead like a hub at the centre, is very different to the urban sprawl we are used to. Each village has its &lsquo;<span style="mso-spacerun: yes;">&nbsp; </span>own character and characters,<span style="mso-spacerun: yes;">&nbsp; </span>and everywhere there is a welcome and an invitation to join in.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;"><span style="mso-spacerun: yes;">&nbsp;</span>We have made many good friends, particularly<span style="mso-spacerun: yes;">&nbsp; </span>Prim Rayner ,who introduced me to the Gosfield ladies being taught &ldquo;Bridge&rdquo;, Sarah Best, who introduced us to the Hedingham singers and Mary Crawley who got me involved in the Maplestead WI , and &ldquo;The lovely ladies &ldquo;.<span style="mso-spacerun: yes;">&nbsp; </span>These people became close personal friends in a very short space of time,</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">&nbsp;</span><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;"><strong>Then the blow fell and we learned just how supportive this community is</strong>. </span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">Soon after we moved into our new home I<span style="mso-spacerun: yes;">&nbsp; </span>was<span style="mso-spacerun: yes;">&nbsp; </span>re-diagnosed as having a rare neurological disease, Multiple System Atrophy (MSA) of which very few people have heard and which usually closely resembles <span style="mso-spacerun: yes;">&nbsp;</span>Parkinson&rsquo;s Disease in the early stages. It is so rare that there are only about three thousand sufferers in the U.K. and only one<span style="mso-spacerun: yes;">&nbsp; </span>charity supporting them; the<span style="mso-spacerun: yes;">&nbsp; </span>MSA Trust. There is no cure, no remission and only treatment to relieve the symptoms .My friends in<span style="mso-spacerun: yes;">&nbsp; </span>Halstead, have<span style="mso-spacerun: yes;">&nbsp; </span>decided to help by raising funds for the Trust, and spreading knowledge of the disease<span style="mso-spacerun: yes;">&nbsp; </span>and the work of the Trust.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">In this,we have not only been supportedby my friends but it seems like the whole community has become involved in raising funds,and becoming aware </span><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">of the terrible repercussionsof the condition.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">The first event of which was a family afternoon of fun,&nbsp; held on 31st July in the grounds of<span style="mso-spacerun: yes;">&nbsp; </span>Highwoods<span style="mso-spacerun: yes;">&nbsp; </span>Farm, the home of Robert and Sarah Best, when the Mayor of Halstead&nbsp;was in attendance. There was&nbsp; entertainment, provided by&nbsp;The Halstead Gospel Singers&nbsp;, solos provided by John Birt,Beccky Gagen and Toby Parr&nbsp; the choir-master and organist and his wife .Produce stalls and a strawberry cream tea, also some substantial prizes&nbsp;were donated by local businesses. </span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">Sarah and Mandy spent days preparing scones for the tea and jams and </span><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">chutneysfor sale as well as co-ordinating the efforts of many other people,and Prim co-ordinated the business part of&nbsp; what has proved to be a much bigger event than was at first planned </span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">On the day they would settle&nbsp;for nothing less than perfection,which&nbsp;meant that by the end of the day all were exhuasted but exhilarated for the event raised in excess of &pound;1800 . I shall be forever&nbsp;in their debt for joining me in fighting back against this cruel fate. They plan an even bigger event next year.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;"><span style="line-height: 115%; font-family: &quot;Lucida Handwriting&quot;; color: #4f6228; font-size: 14pt; mso-bidi-font-size: 12.0pt; mso-themecolor: accent3; mso-themeshade: 128;">Thank-you for making the time to visit just giving.</span></p> <p class="MsoNormal" style="text-align: center; margin: 0cm 0cm 10pt;">&nbsp;</p> <p>&nbsp;</p> <p>.</p> <p>&nbsp;</p>

Donation summary

Total
£2,025.00
Online
£1,970.00
Offline
£55.00

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