Edward's page
Event: Virgin London Marathon 2012 on 22/04/2012
£2,935.20 raised of £2,000.00 target
62 donations
My Target:
£2,000.00
£2,935.20 raised so far
How to make a donation
Donate online at - www.justgiving.com/Edward-Winter
By mobile internet Scan this code on your smartphone to go straight to Edward Winter's page.
By text message to donate £10 Text BYNE55 £10
to 70070
My story
On April 22nd I'm running the Virgin London Marathon in aid of ASSERT (Angelman Syndrome Support Education and Research Trust). ASSERT is a United Kingdom based group who support families and carers of children and adults with Angelman Syndrome through difficult times especially at the time of diagnosis. ASSERT holds a very successful biannual conference, this is heavily subsidised by the charity which is totally reliant on donations and 100% of donations benefits families .The majority of the trustees are parents or relatives of children or adults with Angelman Syndrome. I heard about ASSERT because my soon to be brother in law, Matthew has this syndrome.
Angelman Syndrome is a rare genetic condition first identified in 1965 by a British doctor, Harry Angelman, from whom it also gained its name.
The syndrome - originally called 'Happy Puppet Syndrome' because of the characteristic happy demeanour and stiff jerky movements of the children - was renamed Angelman Syndrome in 1982. Although at first little was known and indeed few other cases identified, in recent years much more has been learned. During the 1980's advances in genetic medicine made it possible to diagnose increasing numbers of cases and also to start identifying the cause.
In simple terms, it is a chromosome disorder that causes severe learning difficulties. It is now known that irregularities in Chromosome 15 are responsible for AS. However it is also known that there are several different irregularities that can occur in Chromosome 15, all of which result in a diagnosis of AS.
Angelman Syndrome is not a disease, it is a neurological disorder that causes severe learning difficulties, and although those affected have a normal life expectancy, they will require looking after throughout their lives. It's possible to go from knowing nothing about AS, to being overwhelmed by the information now available to families of those newly diagnosed with AS. It can be very difficult to understand all there is to know about AS very quickly. That is why ASSERT is so important so that families are not overwhelmed.
My gallery 1
My charity
Angelman Syndrome Support Education & Research Trust
Charity Registration No. 1021882
ASSERT provides support to the individuals and families who are affected by Angelman Syndrome. This is done by sending out information packs, producing a regular newsletter and providing a helpline to support families and professionals.
Donations 62
Well done.
Donation by Miller Charities Committee on 23/04/12
£500.00
Well done ed.
Donation by Christopher Thornton on 23/04/12
£50.00
+ £12.50 Gift Aid
Go Ed !! X
Donation by Steve Bessant on 21/04/12
£20.00
+ £5.00 Gift Aid
Good luck in the London Marathon x
Donation by Maurice Curitz on 21/04/12
£10.00
+ £2.50 Gift Aid
Good luck Ed. We'll confer times next week!
Donation by Jonathan Rudland on 20/04/12
£20.00
+ £5.00 Gift Aid
Good luck mate - we will be cheering you on from one of the local pubs!
Donation by Paul, Mel & Anabel x on 20/04/12
£100.00
+ £25.00 Gift Aid
Best of luck for Sunday, Ed, hope it all goes as well as expected!
Donation by Rory Edwards on 20/04/12
£20.00
+ £5.00 Gift Aid
Good luck Steady Eddy....and I mean that for Barcelona more than for the marathon!
Donation by Grant English on 20/04/12
£20.00
+ £5.00 Gift Aid
Go Ed go Ed go Ed go Ed :-) Hope to spot you on the way round. Good luck!
Donation by Laura Dagger on 20/04/12
£20.00
+ £5.00 Gift Aid
Good luck!!!
Donation by Bassel Matta on 20/04/12
£20.00
+ £5.00 Gift Aid
Don't get lost. Good luck and enjoy it.
Donation by Henry Smith on 20/04/12
£20.00
+ £5.00 Gift Aid
Best wishes and have an enjoyable day - Tremendous commitment to a Great Cause Also excellent surname
Donation by Laurence Winter on 20/04/12
£10.00
+ £2.50 Gift Aid
Wardo, best of luck I know you can do it and you've trained so hard.....all about the watch ;-) excellent cause close to our hearts.Nat&Isabellex
Donation by Natasha Catchpole on 18/04/12
A worthy cause and a great personal achievement - once you've made it to the finish line! You'll do it! Best of luck. Roz & Kev x
Donation by Roz Insley on 18/04/12
£40.00
+ £10.00 Gift Aid
Good Luck Edwardio! Love Lauren and Harry xx
Donation by lauren percival on 17/04/12
£35.00
+ £8.75 Gift Aid
Good Luck Ed... just keep the picture of the finish line in your head and we'll see you there with some jelly babies :-)
Donation by Laura Walburn on 17/04/12
£52.00
+ £13.00 Gift Aid
I'm sure you'll do amazingly well, look forward to seeing you at the finish line! ;-)
Donation by Rachel Walburn on 17/04/12
Good luck Ed
Donation by Emma Brown on 17/04/12
£15.00
+ £3.75 Gift Aid
very best wishes for a successful day
Donation by bernard devereese on 16/04/12
£10.00
+ £2.50 Gift Aid
Good Luck
Donation by Peter Rossell on 16/04/12
£10.00
+ £2.50 Gift Aid
Donation by Anonymous on 16/04/12
£10.00
+ £2.50 Gift Aid
Good Luck Ed!! :)
Donation by georgia patsalou on 16/04/12
£5.00
+ £1.25 Gift Aid
Enjoy!
Donation by Rob Ashby on 16/04/12
£40.00
+ £10.00 Gift Aid
Briefcase get ready for the sprint finish!!!
Donation by Peter Draper on 13/04/12
£26.00
+ £6.50 Gift Aid
Good luck Ed!! I hope you've been training!
Donation by Helen Johnson on 13/04/12
£20.00
+ £5.00 Gift Aid
Donation summary
- * Online donations£2,265.20
- Offline donations£670.00
- Text donations£0.00
- Total raised£2,935.20
- Gift Aid£416.30
* Charities pay a small fee for our service. Find out how much it is and what we do for it.
