3rd March 2012 - we have had amazing support over the past 12 months and thank all those who have donated to Ellie's cause - the money raised is due to give the Children's Ward fantastic new facilities and a beautiful memorial garden which I will post pictures when complete.
IMPORTANT INFORMATION!!!
THIS JUST GIVING PAGE IS NOW CLOSED - TO ENSURE ALL FUTURE DONATIONS REACH THE LITTLE MISS ELLIE FUNDRAISING PLEASE ADDRESS ANY CHEQUES/CASH DIRECT TO THE WARD C/O SUE PALIN, LEIGHTON HOSPITAL CAU, MIDDLEWICH ROAD, LEIGHTON, CREWE CHESHIRE.
HUGE THANKS FOR YOUR CONTINUED SUPPORT
3rd March 2011
This is the saddest day of our lives - beautiful Little Miss Ellie has left our arms forever.
Updated on Mar 3rd 2011 at 2:18 AM from the JustGiving API
Wear it Purple is proving such a great success, remember you can do it anytime- it's just a fun non uniform day! (or mufty day for you midlanders) Ellies fund is going from strength to strength - we don't want to increase the target we just want to keep smashing it!!!! Xxxx
Updated on Mar 1st 2011 at 4:07 PM from the JustGiving API
Huge thanks to all who are making this fundraising so successful you are helping us make an amazing legacy for a very special little girl. Xxxxx
Thanks for taking the time to visit my JustGiving page.
Little Miss Ellie
Mummy and Daddy wanted me to share my life with people who care about me. I was born on the 4th of September 2010 and in the the first four weeks of my life my family and I had a very difficult time waiting to hear my diagnosis. The doctors finally finished scratching their heads about why I am poorly and they have given it a big long name. I have a rare disorder called Neonatal Adrenoleukodystrophy. It is part of the Zellwegger Sectrum of peroxisomal biogenisis disorders.
Since I was born I have spent over 10 out of my 16 weeks in hospital, the most part with the wonderful team on Ward 17 at Leighton Hospital. I am currently there now,(29/12/10) for the 5th week in a row.
I am dying from this horrid horrid disorder, I dont know when sometimes it feels like only days, but I am so special to my Mummy and Daddy they dont want anyone to forget me.They are so grateful for the kindness and support we are given here that they would like to raise money to supply enough equiment to furnish a room in my honour.
People keep asking how they can help:- So instead of buying me teddies, (I have enough love and cuddles here) and chocolates and cakes for Mummy and Daddy (they need to lose weight), if you want to help, donate that money here instead, whether its 50p or £50 (Thats a nice big box of chocolates by the way, so maybe we can discuss things...hah hah ahha) If you are thinking of doing a charity event, do it for my cause.....all of your support is gratefully recieved.
Here's the official blurb about what will happen to your money.....
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
