<p>Thanks for taking the time to visit my JustGiving page.</p> <p><span style="background-color: #ffffff; color: #333333; font-family: &#39;lucida grande&#39;, tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 18px; text-align: left;">A very good friend of mine, Nikki Grame's son,</span><span style="background-color: #ffffff; color: #333333; font-family: &#39;lucida grande&#39;, tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 18px; text-align: left;">&nbsp;was diagnosed with Atypical CF when he was just 3 weeks old. He continues to be well, but any support towards CF Trust helps to fund vital research to find better treatment and perhaps even a cure. Hope is on the horizon for their little boy. </span></p> <p><span style="background-color: #ffffff; color: #333333; font-family: &#39;lucida grande&#39;, tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 18px; text-align: left;">CF needs more awareness as 1 in 25 carry the gene and if two people have the gene (like my friend and her husband) there is a 1 in 4 chance their&nbsp;baby will&nbsp;have it.&nbsp; Each week five babies are both with CF and it's one of the UK's life threatening inherited diseases.&nbsp; A lifetime of physiotherapy and medication is part of every day life for someone with it and life expectancy is currently around 40.</span></p> <p><span style="background-color: #ffffff; color: #333333; font-family: &#39;lucida grande&#39;, tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 18px; text-align: left;">So please dig deep in your pockets, if you can, e</span>ven just 50p or a pound all helps.&nbsp;<span style="background-color: #ffffff; color: #333333; font-family: &#39;lucida grande&#39;, tahoma, verdana, arial, sans-serif; font-size: 14px; line-height: 18px; text-align: left;">it'd be immensely appreciated.</span></p> <p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p> <p>So please dig deep and donate now.</p>