Thanks for taking the time to visit my JustGiving page.

On 21 September 2012 Tommy, Paul, Emma, Amelia, Dot, Alan and Daniel will be doing the 15 mile Carrot Night Walk.  On 28 October Emma will be running the Run to the Beat half marathon (13.1 miles) in Greenwich.

The reason we are doing this is because our Son, Brother, Grandson and Cousin Tommy Salisbury has Choroideremia, which it is a rare inherited eye disorder that causes progressive sight loss. This genetic condition is passed through families by the X-linked pattern of inheritance and so the condition almost exclusively affects males. Those with choroideremia tend to develop night blindness in their teens, which progresses to tunnel vision and blindness 20 to 30 years after the onset. 

Thanks to the Tommy Salisbury Choroideremia Fund set up by Emma in 2005 research into new treatments for Choroideremia has been greatly enhanced. Following the worlds first clinical trial they hope to see direct benefits for patients, stopping the progression for Tommy and others suffering with this condition.

Over the last few years the Tommy Salisbury Choroideremia Committee  has raised approximately £280,000 for research into Choroideremia.  

Please help by sponsoring us and support this amazing charity.

 With many thanks

Tommy's Family Team

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