My story

 

The Simon Adams Tribute Fund

 

Simon was 46 when he was diagnosed with motor neurone disease and told he would die in two years.   He was a popular head teacher in Plymouth, an avid rugby player and extreme skier, and everybody’s friend.  Within a week of the shocking news he had made his bucket list and determined to enjoy every day he had left.  Top of his list was to raise awareness of MND and £1,000,000 to help find a cure – an ambitious goal for someone with so little time. 

 

In the six months before getting around became too difficult Simon skied in France, swam with sharks in South Africa, trekked around Uluru (Ayres Rock) in Australia.  He and his friends organised fundraisers throughout the UK and abroad.  He reached a third of his target before he died in October 2011, just two weeks short of two years from diagnosis.  At his funeral his friends vowed to continue fundraising to reach his goal. 

 

Five months after he died Justgiving.com honoured him with their top award as Fundraiser of the Year 2012.   His wife Maxine accepted it at a ceremony in London.

 

To raise money over the past 3 ½ years more than 1500 friends and 4,316 schoolchildren have run the Plymouth Half Marathon,  rugby teammates have cycled between Warwickshire and Devon,  friends have planted his banner on the top of Mt Kilimanjaro.   There have been pub quizzes, gala balls, Ascot Ladies Day parties, cricket matches, rugby tournaments, and auctions.

 

Research is progressing so quickly now that it is just possible that Simon’s million will lead to the cure that he so desired.

 

Simon was keen that all money will be used to research motor neurone disease in the hope that one day, in the not too distant future the words

 

"you have motor neurone disease"

 

will be followed by the phrase

 

"it is curable"

 

 

Simon lost his battle for life on 6 October 2011 just two years after he was diagnosed with Motor Neurone Disease. 

 

My charity

Motor Neurone Disease Association

Motor Neurone Disease Association

Charity Registration No. 294354

The Motor Neurone Disease (MND) Association is the only national organisation in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them. Our mission is to fund and promote research to bring about an end to MND. Until then we will do all that we can to enable everyone with MND to receive the best care, achieve the highest quality of life possible, and die with dignity. We will also do all that we can to support the families and carers of people with MND. Our vision is of a world free of MND.

Donations 787

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James - hope the ride is going well and you raise lots of money, I do miss you, and the rest of the pack... with love and licks Rosie Scamper xxxx

Donation by Julia Cripps on 21/05/11

£30.00

+ £7.50 Gift Aid

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Just found you on the This is Devon website - thank you for making me truly grateful for this "boring" day at work.

Donation by Sharon Critchlow on 16/05/11

£20.00

+ £5.00 Gift Aid

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Just found my way to this through facebook.. what a fantastic cause, and what bravery.

Donation by Amie Mcloughlin on 28/04/11

£5.00

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To my big brother James for his intrepid cycling challenge in aid of MND. Hope you have fun. Love also to Simon & Maxine. Love Sue Xx

Donation by Sue Cleveland on 22/04/11

£15.00

+ £3.75 Gift Aid

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Donation by Philippa Cross on 19/04/11

£10.00

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Monies raised from the car boot at the Country Fair. With lots of love to Simon & Maxine. Julie & Mandy.

Donation by Julie Baldwin on 05/04/11

£165.00

+ £46.54 Gift Aid

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Sorry we will be away for the Country House Fair this weekend. Every success with the fundraising. Wendy & John Sheldon

Donation by Gwendolen Sheldon on 30/03/11

£30.00

+ £8.46 Gift Aid

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Donation by Artur Rybicki on 30/03/11

£11.00

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Hello there, I received an email from Malcolm Moaby about your fundraising. I wish you every success. My very best to you.

Donation by Victoria Lewis on 17/03/11

£25.00

+ £7.05 Gift Aid

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Donation from penny jar we have at 'A Quiz Like No Other' which is held monthly at the Ice Warm Cafe. Hope to fill it up again soon for this fab caus.

Donation by A quiz like no other on 13/03/11

£7.00

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Hi Simon.Wishing you all the best to continue with you fund raising. I stayed the night at your Mum and Dad's B&B with family. Good Luck x

Donation by Linda Holburn on 01/03/11

£25.00

+ £7.05 Gift Aid

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Hi Simon. All the best with your fund raising. We stayed the night at your mum and dad's bed and breakfast. Good luck with your efforts xx

Donation by Joanna Hunter on 27/02/11

£100.00

+ £28.21 Gift Aid

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Belated half marathon raised monies. very best wishes

Donation by Cathryn Tompkins on 22/02/11

£130.00

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Best of luck in raising 1 million!

Donation by A Curtis on 18/02/11

£10.00

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Sorry it's taken so long to send this. We weren't able to attend the fundraising event at your parent's.

Donation by Zena Greig on 10/02/11

£20.00

+ £5.64 Gift Aid

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Great campaign. I also have a penny jar to enable further donation this year.

Donation by A Quiz Like No Other on 13/01/11

£15.00

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Instead of sending cards at work.

Donation by Helen Cumming on 01/01/11

£10.00

+ £2.82 Gift Aid

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A Small Christmas donation. With very best wishes Jeremy and Suzanne Wood

Donation by Suzanne Wood on 23/12/10

£40.00

+ £11.28 Gift Aid

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Thanks for eating all the curry and best wishes for Simon and Max. Love always. xxx

Donation by Claire Tucker on 29/11/10

£223.00

+ £62.90 Gift Aid

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Donation from John Clarke

Donation by Simon Adams on 29/11/10

£100.00

+ £28.21 Gift Aid

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Many thanks for your support Cadd Lorraine on my N3P journey and all for a great cause, many thanks again :) hope you reach your target Simon.

Donation by Jane Hill on 19/11/10

£15.00

+ £4.23 Gift Aid

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Saved 10lb on my hips not being able to make Claires curry night so here's £10. Love to Simon and Max

Donation by Sue Cleveland on 19/11/10

£10.00

+ £2.82 Gift Aid

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Stayed at your Dad's B&B the other day and thought I had support your admirable approach to your diagnosis-go for it!.

Donation by Andrew Frankland on 16/11/10

£25.00

+ £7.05 Gift Aid

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Best wishes Simon, Regards Jeremy

Donation by Jeremy Milnes on 15/11/10

£30.00

+ £8.46 Gift Aid

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Hi Simon Proceeds from the entry donation to Berni's BVintage Bazaars at Bray. Lovely to see you and Max at the first. Lots of love The Bailes

Donation by Andrew Bailes on 09/11/10

£260.00

+ £73.33 Gift Aid

Donation summary

  • * Online donations£62,745.58
  • Offline donations£338,185.10
  • Text donations£0.00
  • Total raised£400,930.68
  • Gift Aid£14,154.85

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