The Simon Adams Tribute Fund
Thanks for taking the time to visit my JustGiving page.
On the 30 October 2009, two weeks after my 46th birthday, I was informed by a neurosurgeon that I was suffering from Motor Neurone Disease. The prognosis is quite simple, death. The timescale is anything up to three years from the time the symptoms became apparent. For me this was on a Christmas pub crawl in 2008 when I became unable to form words. In March I lost the use of my right arm. I am told that compared to many sufferers my diagnosis was quick.
The horror of being diagnosed with a terminal disease for which there is very little effective medication, and which strikes sufferers down in most undignified way, is hard to put into words. Please visit the association website http://www.mndassociation.org/ for more information.
All money will, like my body, be used to research motor neurone disease in the hope that one day, in the not too distant future the words
"you have motor neurone disease"
will be followed by the phrase
"it is curable"
Thanks again
Simon
Simon lost his battle for life on 6 October 2011 just two years after he was diagnosed with Motor Neurone Disease.
