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Ladies and Gentlemen, this is a quick whip round for sponsorship of a charity which helps children and families of children who suffer from EB (Epidermolysis Bullosa).
What is EB?
Epidermolysis Bullosa is often referred to as the worst condition you have ever heard of.
EB is a group of genetic disorders that result in fragility of the skin and, in some cases, other internal membranes and organs. Blisters, open wounds and sores form as a result of the slightest touch, rub or trauma.
Certain types of EB can be fatal in infancy and others are severely life-limiting. We estimate that there more than 5,000 people with EB in the UK, and 500,000 worldwide.
EB may be inherited in either a dominant (usually one parent carries the gene for EB and is affected by the condition themselves) or a recessive form (where both parents carry the gene but are usually unaffected, so the birth of an affected child is totally unexpected).
There is currently no known cure for EB.
To learn more, please click here:
The charity I will be raising money for is called: DEBRA
On Saturday 8th June 2013 I will be competing AND completing an event called TOUGH MUDDER. Some of you may have heard of this, for those of you that haven't, it's a 12 Mile assault course with 25+ obstacles designed by British Special Forces in the mud, gravel, clay, grass, fire and water. It involves climbing, running, swinging, crawling, swimming, being ELECTROCUTED and TEAMWORK.
I know its short notice but I am asking for whatever you can give, pounds or pennies to help these people live a more comfortable life.
Thank you very much.
Gemel