<p>Hi,&nbsp;I'm cycling from Chester to Paris starting on August 3rd 2011. This journey of over 500 miles is in aid of Dravet UK.</p> <p>&nbsp;</p> <p><span style="font-family: Myriad, 'Myriad Pro', Palatino, 'Rotis Sans Serif', serif; font-size: 16px;">Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy (SMEI), is a progressive childhood neurodevelopmental disorder characterized by severe epilepsy that does not respond well to treatment. Estimates of the prevalence of this rare disorder have ranged from 1:20,000 to 1:40,000 births, though incidence may be far greater as new genetic evidence is discovered. It occurs more frequently in boys than in girls, but knows no geographic or ethnic boundaries.</span></p>