Hi everyone, here’s a snippet from Sudep in action to explain why I’m doing my skydive for SUDEP...

“Charlie, from Wiltshire, had his first seizure on 7 October, 2011, and was attended by a paramedic crew who thought it might be a febrile convulsion.  Charlie’s mum Jan then took Charlie to see their GP who suggested he might be suffering from nocturnal epilepsy and referred him to see a neurologist.  Tragically, before the neurologist appointment took place, Charlie had a second seizure and died four days later.

Together with the Burns family and charity SUDEP Action, to raise awareness  and to help paramedics and other healthcare professionals to understand and identify epilepsy risk factors including those associated with SUDEP in order to help minimise the risk to future patients. 

“Epilepsy can and does kill.  We didn’t know our little boy had anything wrong with him, there were no neurological signs going on.  The first we knew about it was when had to call for an ambulance, then four days later he had a seizure that killed him. The positive outcome is that we’re now working in partnership with SWASFT to raise awareness.  We want to make sure this doesn’t happen to another family.”

“Epilepsy kills 1200 people annually, and since we’ve been campaigning to raise awareness the numbers have increased.   SUDEP is less common in young children than in adults, but can still happen. Charlie, at 10, was very young – one of the youngest.”

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