Out run Rett

Gillian Mackinnon is raising money for Reverse Rett
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Out run Rett · 1 February 2018

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

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Kim (above) has Rett Syndrome, which is a rare genetic neurological and developmental disorder. This means that Kim can’t walk or talk, her coordination is impaired and she has a progressive inability to use muscles for hand and body movements.

I have worked with Kim since she was 11 months old, she is an inspiration to me with how far she has come along through hard physio therapy sessions and various other therapies.. always smiling I love her very much, so when her Mum and dad told me all about reversing Rett and how close the labs are to having a cure AND within the next few years,  I had to join in the fundraising as it’s all down to raising enough money to push it through to starting clinical trials on us humans. So please please if you have any money spare then donate for this beautiful girl, she deserves a life she can fulfil, just like us 👍😊 xx

Donation summary

Total
£750.00
+ £146.25 Gift Aid
Online
£750.00
Offline
£0.00

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