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Dingles Du't Roses

John Mann is raising money for Cystic Fibrosis Trust
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The Way of the Roses · 24 May 2015

Cystic Fibrosis Trust Verified by JustGiving
RCN 1079049 (England & Wales), SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Story

Thanks for taking the time to visit our Just Giving page.

We are a group of unfit 40 somethings, cycling Coast to Coast (Morecambe Bay to Bridlington) over 3 days to raise money for the CF Trust.

Henry was born with Cystic Fibrosis, he is 7 years old, and an amazing little boy.

Myself, Paul Stratford, Phil Taubman, Brett Wilson, Johnathan Eyre, Chris Moody & Pete James, will be taking up the challenge, on Saturday 23rd May - Come on lets Kick Some CF Butt!

Cystic Fibrosis is an inherited life shortening disease, affecting over 10,000 people in the UK. CF is caused by a faulty gene, this gene controls the movement of salt & water in & out of your cells. Because of this your bodily secretions become thick & sticky, resulting in your lungs & digestive system becoming clogged with mucus, making it hard to breath and digest food.

Cf is a degenerative disease, to keep healthy, Henry must exercise regularly, eat a high fat/calories diet (needing 50% more calories than a healthy child), and take daily medication(20/30 tablets per day), nebulisers (4 per day) & physiotherapy (2/3 times per day).

The average life expectancy for a person with CF is currently 41.There is no cure for CF.

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Donation summary

Total
£2,761.00
+ £331.50 Gift Aid
Online
£1,416.00
Offline
£1,345.00

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