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In February 2013 I was told that after years of back and forth of getting ill, going to doctors and getting the brush off lines "It's just a virus" or "You're probably just a little depressed" that there was in fact a name to the misery I was feeling and that was Myalgic Encephalomyelitis (ME) along side Fibromyalgia and Costochrondritis. My life and my husband's life completely changed. 

Not a lot is known about ME, a lot like many invisible chronic illnesses, there are still so many misconceptions about these illnesses too and the stigma sufferers face is incredible. In the simplest terms and most convenient definitions, imagine you had severe flu on top of a hangover and then ran a 10k marathon...then you'd pretty much feel how we feel on a "good" day. 

The symptoms are long and many but include: severe fatigue, insomnia, memory problems, numbness, severe pain, dizziness, confusion, visual disturbances, severe nausea and any small illness like cold or virus can be extremely dangerous to us. This is every day not just once a month or a symptom a day, its every one, every day. I am housebound every day and can not go out without someone with me. Many days I wait on the car while my husband does shopping because the confusion and tiredness is just too much to take in, especially in  a supermarket. I am bed bound at least 4 days a week as just one event can take me weeks to recover, life takes a lot to live! 

That's why I'm an Ambassador and  I'm campaigning to help ME Research UK raise money to fund their biomedical research to find a reason and hopefully one day a treatment that works. 

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