My story

Harriet is our 3rd child we had 2 boys before her - all our wishes were granted when she was given to us! Life was so complete until at 18 months we realised something was 'not quite right' with our little girl.

It took a long year to get our diagnosis of rett syndrome and even as I read everything on this awful condition I could not beleive my beautiful, happy daughter would never be leaving home...

And then we found RSRT, a ray of light, a huge gift of hope such a relief that 'somethings being done' but all the time we have this feeling we also have the stomache wrenching, heart ache that the only thing stopping RSRT moving forward quickly is funding!

 we look at the RSRT proposals and it seems so easy on paper...our girls have NO BRAIN DAMAGE, we have seen that the condition CAN BE REVERSED - surely this is a priority, surely everyone else should see the potential that all our little angels could have??

 

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My charity

Rett Syndrome Research Trust UK

Rett Syndrome Research Trust UK

Charity Registration No. 1136809

Rett Syndrome Research Trust UK has one goal: to accelerate treatments and a cure for Rett Syndrome and related MECP2 Disorders. Rett Syndrome has already been reversed in the lab. With your help, we can build a brighter future for our children.

Donations 59

Donation by Anonymous on 15/05/13

£5.00

+ £1.25 Gift Aid

Donation by Lorien Loten on 13/12/12

£400.00

+ £100.00 Gift Aid

Donation by nick beardsley on 10/12/12

£1,160.00

+ £290.00 Gift Aid

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Best wishes with your fundraising activities

Donation by Fiona Loughran on 27/11/12

£10.00

+ £2.50 Gift Aid

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Our love and prayers are with you, Laura, Phil, Joseph and Marcus xx ( friends of Cheryl, Peter and Jonathan)

Donation by philip anthony gowers on 25/11/12

£10.00

+ £2.50 Gift Aid

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I won the great south run sweepstake at work, so here you go Harriet, every little helps

Donation by Eric De Greef on 30/10/12

£15.00

+ £3.75 Gift Aid

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Donation by Anonymous on 02/10/12

£474.00

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Donation by Anonymous on 09/08/12

£5.00

+ £1.25 Gift Aid

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My sponsorship money, x

Donation by Joanna Toms on 02/07/12

£50.00

+ £12.50 Gift Aid

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disco dancing lotens love you xx

Donation by Lorien Loten on 12/06/12

£150.00

+ £37.50 Gift Aid

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just a little more to help such a worthwhile cause and fantastic family xx

Donation by Lorien Loten on 07/04/12

£400.00

+ £100.00 Gift Aid

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Im so proud of hope for harriet mum has done a great job in the award finals so desided to give up my pocket money!!!!!!!!!!!!!!! xxxxx

Donation by Ethan phillips on 02/02/12

£7.00

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Love you Harri, Lots of Love Auntie May and Uncle Chris. xxxxx

Donation by Margaret Coleman on 14/01/12

£200.00

+ £50.00 Gift Aid

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Happy New Year Harri xx

Donation by Lorien Loten on 09/01/12

£150.00

+ £37.50 Gift Aid

text donation

Donation by Anonymous on 21/12/11

£10.00

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Donation by Anonymous on 24/11/11

£2.00

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Donation by Anonymous on 24/11/11

£5.00

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Donation by gail lennan on 24/11/11

£3.00

+ £0.75 Gift Aid

So sorry we can't make it on the 26th; hope everything goes brilliantly. Loads of love, Fiona, David and Jemima xxx

Donation by Fiona Macdonald on 08/11/11

£50.00

+ £12.50 Gift Aid

Darling Harriet , so brave after your big op ! well done princess xxx

Donation by Lorien Loten on 06/11/11

£290.00

+ £72.50 Gift Aid

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lots of love as always , the Lotens xxxxxxxxxxxxxxx

Donation by Lorien Loten on 15/08/11

£200.00

+ £50.00 Gift Aid

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Hiya Kelly, just sent a wee present for HarrietXX

Donation by Sandra Nanning on 29/07/11

£20.00

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Love from Liza, Mike, Fin and Louie xxx

Donation by Michael Howe on 16/06/11

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Love from Fiona, David & Jemima xxx

Donation by Fiona Macdonald on 24/05/11

£135.00

+ £33.75 Gift Aid

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Well done to Fiona for your walk

Donation by David Brewer on 18/05/11

£15.00

+ £3.75 Gift Aid

Donation summary

  • * Online donations$10,253.04
  • Offline donations$124,891.19
  • Text donations$30.32
  • Total raised$135,174.55
  • Gift Aid$1,786.09

* Charities pay a small fee for our service. Find out how much it is and what we do for it.