Harriet is our 3rd child we had 2 boys before her - all our wishes were granted when she was given to us! Life was so complete until at 18 months we realised something was 'not quite right' with our little girl.
It took a long year to get our diagnosis of rett syndrome and even as I read everything on this awful condition I could not beleive my beautiful, happy daughter would never be leaving home...
And then we found RSRT, a ray of light, a huge gift of hope such a relief that 'somethings being done' but all the time we have this feeling we also have the stomache wrenching, heart ache that the only thing stopping RSRT moving forward quickly is funding!
we look at the RSRT proposals and it seems so easy on paper...our girls have NO BRAIN DAMAGE, we have seen that the condition CAN BE REVERSED - surely this is a priority, surely everyone else should see the potential that all our little angels could have??
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