Ian Gordon is fundraising for RETT syndrome Association UK

Ian's page

Photos (3)

oh wow, you need to have Flash player installed and javascript enabled

Raising money for

RETT syndrome Association UK

Charity Registration No. 327309

Rett syndrome is a rare neurological disorder affecting mainly females and very few males. People with Rett syndrome have profound and multiple physical and learning disabilities and are totally reliant on others for support throughout their lives.

Imagine a healthy baby girl start to become a little person; smiling at 6 weeks, picking things up when she’s 7 months old and at 10 months, she’s crawling her way into everything. Imagine her 1st birthday; she sits up without help and smiles at the camera - even saying her own version of “cheese.”

Now imagine that same baby at age 2. She can no longer sit unaided, stops using her hands to do things and starts wringing them all the time. She starts having seizures and by the time she’s 3, she is grinding her teeth and stops talking. At 6, her spine starts to curve, limiting how well she can move. She screams and laughs during the night for no reason and doesn’t respond to or interact with others. By her 8th birthday, she can’t move on her own, can’t talk and pulls away from social contact with others. This is the reality for parents with children who have Rett syndrome. RSAUK is a national charity seeking to make a difference for people living with Rett syndrome by:

Funding research
Supporting families through telephone support, clinics and our network of support advisers
Providing latest information and best practice
Promoting awareness

Page owner

Ian Gordon

Page closes

19/09/2014

RSS

Raised: 439%

Target: £1,000.00
Raised so far: £4,390.00

Donate now

My story

Thanks for taking the time to visit my JustGiving page.

Beginning on 6th October 2009, I shall be walking the Hadrians Wall Path from Wallsend on the east coast to Bowness-on-Solway on the west coast, a total of 84 miles. By doing so I hope to raise money to support the Rett Syndrome Association.

My adorable little grand-daughter, Romi, whose picture decorates this page, has Rett Syndrome. Rett is a rare and devastating neurological condition that affects around 1 in 10,000 girls. Imagine the symptoms of autism, cerebral palsy, Parkinson’s, epilepsy, and anxiety disorders all in one little girl. Currently there is no cure, and Romi and the other girls like her look forward to a life reliant on others for support and care.

In February 2007, the research journal Science published a paper by Adrian Bird, of the University of Edinburgh, demonstrating the reversal of Rett Syndrome in mice with Rett Syndrome. This remarkable result has established a new paradigm for Rett Syndrome but also other neuropsychiatric conditions, such as autism and schizophrenia. The research is at a very early stage and it may be many years before a safe and effective treatment is available. Neither the government, through the Research Councils, nor pharmaceutical companies can be relied upon to finance the work that lies ahead.

The Rett Syndrome Association provides support to patients and their families and carers. They also directly fund research into the cause and the search for a cure for Rett Syndrome.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

	Well done Ian. Donation by Ewan McConachie 24/11/09
	Well done - sorry donation is late. Donation by Peter & Pat Alexander 11/11/09
	Donation by Dave and Jane Foy 05/11/09
	Congratulations Ian! Donation by Fiona Marshall 30/10/09
	Our contribution to your worthwhile cause. Donation by Tom and Julia 30/10/09
	Donation by Douglas and Frances 26/10/09
	Sorry its late. Well Done. From John, Mari, Michael, Claire & Alistair Donation by Marion Brown 25/10/09
	Well done,Ian. Heartiest congratulations. Donation by Bruce and Elsie 21/10/09
	Donation by Mags and Jim 20/10/09
	Well done!! Donation by Valerie and Jimmy 20/10/09
	Pleased to support the effort - so I cashed a few "assets" Donation by David and Fiona 16/10/09
	Well done on 'walking the walk' Ian! Donation by Alister and Sheena 16/10/09
	Best of luck Ian. Donation by Jim and Jean 16/10/09
	Congratulations on completing your walk - and what a great total so far! Well done! Donation by GILLIAN GRANT 16/10/09
	Ian your a star! Donation by Margaret Anderson 14/10/09
	Well done, Ian! Donation by John Yeoman 14/10/09
	Gees oh! These styles are getting higher!! Donation by John and May Howison. 13/10/09
	From the kitty!! Donation by Alistair, John and Ian 13/10/09
	Take plenty of 'jube jubes'!! Donation by Sheena McNaughton 13/10/09
	Its not for the faint hearted! Donation by Isobel Hood 13/10/09
	There's life in the 'old dog' yet! Donation by Alistair and Lauranne 13/10/09
	Congratulations on completing your walk! Donation by David and Rosemary 13/10/09
	Alastair and Marilyn wish you the best of luck and hope the weather is kind to you. Well done! Donation by Alastair Taylor 08/10/09
	good luck we'll catch up with you when your home Donation by Abby & Isobel Stephen 06/10/09
	Encouraging you at every step. Love from us all Donation by Hamish and Heather Brown 05/10/09
	Donation by Barbara Hendry 05/10/09
	Best of luck. Everyone needs focus in their life and yours is your beautiful grand-daughter. Nice to catch up today. Jen, Glyn, Gregor & Emily Donation by Glyn Morris 04/10/09
	You will easy manage it just as long as there is a rope between Alistair and you to pull you along Donation by Jimmy Malcolm 02/10/09
	Good luck Ian. Hope the weather is kind to you - a tail wind might help! Donation by John Crews 02/10/09
	Good luck Ian. Romi is all the motivation you'll need. Great effort for a worthy cause. Donation by Betty, Sheila and Sid. Newmachar 01/10/09

Donate now

* Total raised online:	£4,340.00
Offline donations:	£50.00
Gift Aid plus supplement:	£809.20

* Charities pay a small fee for our service.
Find out how much it is and what we do for it.