Thanks for taking the time to visit my JustGiving page.
Beginning on 6th October 2009, I shall be walking the Hadrians Wall Path from Wallsend on the east coast to Bowness-on-Solway on the west coast, a total of 84 miles. By doing so I hope to raise money to support the Rett Syndrome Association.My adorable little grand-daughter, Romi, whose picture decorates this page, has Rett Syndrome. Rett is a rare and devastating neurological condition that affects around 1 in 10,000 girls. Imagine the symptoms of autism, cerebral palsy, Parkinson’s, epilepsy, and anxiety disorders all in one little girl. Currently there is no cure, and Romi and the other girls like her look forward to a life reliant on others for support and care.
In February 2007, the research journal Science published a paper by Adrian Bird, of the University of Edinburgh, demonstrating the reversal of Rett Syndrome in mice with Rett Syndrome. This remarkable result has established a new paradigm for Rett Syndrome but also other neuropsychiatric conditions, such as autism and schizophrenia. The research is at a very early stage and it may be many years before a safe and effective treatment is available. Neither the government, through the Research Councils, nor pharmaceutical companies can be relied upon to finance the work that lies ahead.
The Rett Syndrome Association provides support to patients and their families and carers. They also directly fund research into the cause and the search for a cure for Rett Syndrome.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
