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Isla's Brighton Marathon Fundraising for Emily

Isla Sinclair is raising money for NesT
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Brighton Marathon 2011 · 10 April 2011 ·

Nephrotic Syndrome (NS) affects approx 10,000 people in the UK, majority are children, with no known cause or cure. The current treatment is non-specific and highly toxic, with many potentially life-threatening complications. NeST funds Bristol Children's Hospital in researching NS to find a cure.

Story

<p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;">Thanks for taking the time to visit my JustGiving page.</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;">Last summer my fianc&eacute;s&nbsp;young cousin&nbsp;Emily Pierson (aged 9) was diagnosed with a rare kidney disease called Nephrotic Syndrome. This rare condition affects around 10,000 people in the UK but doctors do not fully understand the cause and there is currently no known cure.&nbsp;<span style="mso-spacerun: yes;">&nbsp;</span></span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;"><span style="mso-spacerun: yes;">&nbsp;</span></span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;"><span style="mso-spacerun: yes;">&nbsp;</span>A dedicated team at the specialist Kidney Unit at Bristol Children's hospital is researching the disorder in hope of finding a cure. </span><span style="font-size: 11pt; color: black; font-family: Arial;">This research work is funded solely by charitable donations and grants and has to proceed on a project-by-project basis. The <a href="http://www.nstrust.co.uk/index.php"><span style="mso-bidi-font-size: 12.0pt;">Nephrotic Syndrome Trust</span></a> is a dedicated charity set up to raise money to fund this vital research. The Trust aims to raise awareness of the disease and funds for research to find a cure that will help our Emily and many others.&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 11pt; color: black; font-family: Arial;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 10.5pt; color: black; font-family: Arial;">To help this cause I&rsquo;m asking for your support to sponsor me to raise awareness and much money as I can&nbsp;for NeST&nbsp;in hope that the vital research will find a cure that will help Emily and around 10,000 other suffers in the UK. I would be totally grateful for even the smallest donation and thank you in advance for your support. </span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 10.5pt; color: black; font-family: Arial;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 10.5pt; color: black; font-family: Arial;">On Monday 21<sup>st</sup> February a local newspaper featured an article about Emily and her rare condition to read the article visit <a href="http://www.echo-news.co.uk/news/8866099.Brave_Emily_fights_rare_kidney_disorder/">http://www.echo-news.co.uk/news/8866099.Brave_Emily_fights_rare_kidney_disorder/</a>&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 10.5pt; color: black; font-family: Arial;">&nbsp;</span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="font-size: 10.5pt; color: black; font-family: Arial;"><span style="mso-spacerun: yes;">&nbsp;</span><span style="mso-spacerun: yes;">&nbsp;</span></span></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><em><span style="font-size: 11pt; color: black; font-family: Arial; mso-bidi-font-size: 12.0pt;">Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving &ndash; they&rsquo;ll never sell them on or send unwanted emails. Once you donate, they&rsquo;ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it&rsquo;s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</span></em></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><em><span style="font-size: 11pt; color: black; font-family: Arial; mso-bidi-font-size: 12.0pt;">&nbsp;</span></em></p> <p class="MsoNormal" style="margin: 0cm 0cm 0pt; text-align: justify; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><strong><span style="font-size: 11pt; color: black; font-family: Arial; mso-bidi-font-size: 12.0pt;">Isla xx</span></strong><span style="color: black;"></span></p> <p>&nbsp;</p>

Donation summary

Total
£635.00
+ £121.99 Gift Aid
Online
£615.00
Offline
£20.00

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