FPWR Coast to Coast Scotland Superheos

James Gard is raising money for Foundation for Prader-Willi Research UK
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FPWR Coast to Coast Scotland · 25 August 2016

The mission of Foundation for Prader-Willi Research UK (FPWR UK) is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research. High quality research will lead to more effective treatments and an eventual cure for this disorder. FPWR UK was founded in 2010 by parents of children with Prader-Willi Syndrome.

Story

Thanks for taking the time to visit my JustGiving page.

A group of 20 or so randoms dressed as superheros going from Fort Williams to Inveress by cycling, walking and canoeing in 3 days to raise funds and awareness for the rare Prader Willi Syndrome (PWS), not enough people know about this condition that drastically effects the lives of those affected. My cousin's little man has it and he is amazing, the happiest boy I've met and he deserves better.

Harvey Price (Katie "Jordan" Price's son) has PWS, beyond that most people have never heard of it.

there are clinical trials and studies being help at the moment to research ways to improve the lives of those affected, we need to continue to fund those studies to make that vital break through.

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Donation summary

Total
£787.68
+ £186.25 Gift Aid
Online
£787.68
Offline
£0.00

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