My story

Thanks for taking the time to visit our JustGiving page.

Jayden was born with a congenital heart defect which was later diagnosed as Transposition of the Great Arteries and VSD. 

At less than 12 hours old Jayden was transferred to Southampton Childrens Hospital as they were considered the best hospital to deal with Jayden's heart condition. Jayden was transported in an intensive care ambulance in a specially designed 'pod' to transfer children in a critical condition. Within a few hours we were at Southampton and Jayden was settled into Paediatric Intensive Care.

At two days old Jayden had his first operation a Septostomy to create a hole in the top half of his heart as they thought he didnt have one naturally. It turned out when they did go in through a catheter to do this he already had one it was just covered by a flap of skin! After this operation he went to Ocean Ward for two weeks to await his next operation, the biggest.

His second operation was at 2 weeks old this was the big operation to switch the artery's and close the hole in the bottom two chambers of his heart. This operation took over 6 hours and was one of the longest days of our lives. We had every faith in the surgeon as Marcus Hall was one of the best in Southampton and world reknown. The operation was a success and following this he went back to PICU on a ventilator to recover from the surgery.  

He stayed in PICU for 3 days, he had some scary blips but he was strong and pulled through. Two days post surgery he was taken off the ventilator, gradually weaned off his medicine and was back on Ocean Ward after 3 days. We stayed on Ocean Ward for a further two weeks, we learned how to do his feeds and medicine by nasogastric tube.

After 4 weeks being in Southampton we eventually came home to Plymouth. We carried on his care, had a community nurse visit weekly and now have follow up hospital appointments. He has now been discharged from homecare and after our first hospital visit in January he was taken off his heart medicine.

We are very grateful to all the team at PICU and Ocean Ward in Southampton Hospital for saving our son's life. They do an amazing job and although the PICU unit at first felt daunting with all the machines, beeping and poorly babies we soon felt at ease there and all the nurses were really friendly to us and explained everything that was happening. We just wanted to say a huge THANK YOU!!

Please help us to raise money for the brilliant PICU team and all they do to help save lives of poorly children by donating anything you can! x x

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My updates 1

We will be holding a fundraiser for the Southampton PICU Unit on 1st June 2012 & hope to make as much money as we can for a fab unit! Thank you for your donation xx

21/04/12 14:15

My charity

Friends of PICU

Friends of PICU

Charity Registration No. 1116880

We fund raise to buy equipment, fund major projects and help towards buying a new ambulance for the Childrens Intensive Care unit at Southampton General Hospital. Caring for critically ill children from the south of England and Channel Islands.

Donations 16

smileys.png

Well done on all the money you have raised! Francine Greenwood

Donation by Francine Greenwood on 23/07/12

£5.00

+ £1.25 Gift Aid

Donation by Michelle Elbrow on 19/07/12

£5.00

+ £1.25 Gift Aid

present.png

Good luck with the fund raising!

Donation by Sarah Fox on 19/07/12

£10.00

+ £2.50 Gift Aid

Trumpet.png

Good luck with the charity event, apologies for our absence, have a great evening raising money for a such a deserving cause!! Xx

Donation by Nikki Bees on 04/07/12

£5.00

+ £1.25 Gift Aid

present.png

sorry we can't be at the fundraiser. good luck and hipe it's a successful evening

Donation by shaun, sian & archie x on 02/07/12

£10.00

present.png

Donation by Amanda Luscombe on 14/06/12

£10.00

windmill2.png

sorry cant make the event

Donation by nick hunter on 12/06/12

£5.00

+ £1.25 Gift Aid

windmill.png

Donation by David Street on 02/05/12

£5.00

+ £1.25 Gift Aid

Inmem.png

Good luck! Hope you raise lots for such a good cause. X

Donation by Lannon family on 27/04/12

£10.00

+ £2.50 Gift Aid

windmill.png

From lala :)

Donation by Lara Roberts on 27/04/12

£5.00

+ £1.25 Gift Aid

ThumbsUp.png

great cause, hope you raise lots!! x

Donation by amanda faye symons on 26/04/12

£5.00

+ £1.25 Gift Aid

Trophy.png

hope your little man is ok now

Donation by bekki and joe on 25/04/12

£10.00

+ £2.50 Gift Aid

windmill.png

Hope Baba continues to thrive and bring joy to your lives... X

Donation by Antonia Murphy and Baby Connor on 25/04/12

£5.00

+ £1.25 Gift Aid

Donation by Anonymous on 24/04/12

£10.00

windmill.png

Everyone should dig deep!! Every little helps for such a great place!x

Donation by laura friend on 23/04/12

£10.00

+ £2.50 Gift Aid

windmill2.png

Happy to Donate they do some amazing work

Donation by Jon Sharp on 22/04/12

£10.00

+ £2.50 Gift Aid

Donation summary

  • * Online donations$182.11
  • Offline donations$0.00
  • Text donations$0.00
  • Total raised$182.11
  • Gift Aid$34.14

* Charities pay a small fee for our service. Find out how much it is and what we do for it.