Story
On 2nd June I’m running a trail marathon along the Stour Valley Path in East Anglia. It’s a beautiful route but a very tough course!
I’m raising money for the Brain Tumour Charity. As a community event, it’s also a great opportunity to fundraise in memory of an amazing young girl from our community, Lizzie Bramall.
My company, Fidelity International, will match any funding that is pledged, so it’s a fabulous way to raise money for a brilliant charity.
This is Lizzie’s story.
In February 2018, after a couple of weeks of minor symptoms, Lizzie’s family received the horrifying diagnosis that their daughter Lizzie, aged just 9, had an inoperable brain tumour called DIPG. DIPG affects only around 25-30 children in the UK each year, with an average life of expectancy from diagnosis of only 9 months. Lizzie died in her parents’ arms in November 2018, a week before her 10th birthday.
Lizzie participated in a clinical trial part funded by The Brain Tumour Charity, so she understood first hand the importance of research. Lizzie decided she wanted to set up Lizzie's Fund to further the research funding available into childhood brain tumours. Research into brain tumours is shockingly underfunded in comparison to many other cancers, historically less than 2% of UK cancer research spend, so as a result survival is also amongst the worst of all cancers - yet it is the LARGEST cancer killer of children and young adults under 40.
Thank you so much for supporting our efforts to honour Lizzie's amazing courage.
More details about Lizzie's story are available on www.lizziesfund.co.uk or please email lizziesfund@yahoo.com
The Brain Tumour Charity is at the forefront of the fight to defeat brain tumours, making a difference every day to the lives of people with a brain tumour and their families. We fund pioneering research to increase survival, raise awareness of the symptoms and effects of brain tumours and provide support for everyone affected to improve quality of life. We are committed to having the biggest possible impact for every person affected by a brain tumour, and to defending the most amazing part of the human body.