My story

The Lily Foundation raises funding for research into Mitochondrial Disease awareness, easier diagnosis and maybe one day a cure!

Mitochondrial disease is a cruel/life-limiting/incurable condition, which my neice Ivy and many other children in the UK suffer with. Mitochondrial disease is difficulty to diagnose. Ivy had to go under the knife for a muscle biopsy just to test for a suspected condition. Although the results confirmed our worst fears, we are one of the luckier families with a diagnosis and answers to our questions. Many undiagnosed conditions, even cot deaths, maybe attributed to Mitochondrial Disease.

A beautiful little girl called Lily sadly died in 2007 when she was just eight months. Lily’s family have inspired us - with their energy and drive, setting up The Lily Foundation in Lily’s memory - helping other families like ours, raising money for equipment and research into Mitochondrial conditions! Here is the link to The Lily Foundation http://www.thelilyfoundation.org.uk/

Ivy story features on their web site to inspire others families, here is the link http://www.thelilyfoundation.org.uk/our-inspirations/ivy-gage/

Please help me - to help The Lily Foundation and their vital work!

Thanks for your support - it's a great cause!

Love
James.

p.s.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

My charity

The Lily Foundation

The Lily Foundation

Charity Registration No. 1122071

It helps fund research into Mitochondrial Disease and other metabolic disorders, the training of medical teams and support for families who are stricken with metabolic disorders.

Donations 33

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Well done James, a brilliant effort!

Donation by Peter Brooks on 15/05/12

£52.00

+ £13.00 Gift Aid

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Well done James!

Donation by Ben Rogers on 29/04/12

£10.00

+ £2.50 Gift Aid

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Congratulations and well done James. We are all very proud of you? Love Mum, Dad, Scott, Sarah, Martha, John, and Charlie XXX

Donation by Melvyn Kay on 25/04/12

£50.00

+ £12.50 Gift Aid

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Well Done Mr Kay..... Massive effort on the day and all the training up to it.. Nearly sub 4 hours.. maybe next yr???

Donation by Robert Etchell on 24/04/12

£10.00

+ £2.50 Gift Aid

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I've saved all my pocket for the month and want you to have it.

Donation by Stuart Malcolmson on 24/04/12

£2.60

+ £0.65 Gift Aid

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Well done! Anyone who can run that far deserves a medal!

Donation by Jane Kenyon on 23/04/12

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Run like your wind James!! Well done from all those at LDY. Please come back we love you xx

Donation by Mark Gage on 23/04/12

£180.00

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Well done James. Fantastic effort!

Donation by ben barker on 23/04/12

£27.00

+ £6.75 Gift Aid

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Well done James, hope you enjoyed it.

Donation by Peter Thorpe on 23/04/12

£24.00

+ £6.00 Gift Aid

Good luck today

Donation by Margaret and Jonathan Wilde on 22/04/12

£20.00

+ £5.00 Gift Aid

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James, we're so proud of you!!!! Enjoy now! Love you! Mark, Ruth, Maya, Willow and especially Ivy xxxxx

Donation by Gages on 22/04/12

£26.40

+ £6.60 Gift Aid

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proud of you man...!!!

Donation by Eric Law on 22/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck James, See You Tomorrow Jackie & Paul

Donation by Paul Willis on 21/04/12

£50.00

+ £12.50 Gift Aid

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Donation by Hannah Bullen on 21/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck tomorrow Guys!! Incredibly impressed lots of hugs Shane and Dee

Donation by shane burns on 21/04/12

£20.00

+ £5.00 Gift Aid

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Good luck!

Donation by Mark, Simone, Emelie and Sophie on 20/04/12

£20.00

+ £5.00 Gift Aid

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Good Luck!

Donation by Anna M on 20/04/12

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Good luck James!

Donation by Lucy Gilmour on 20/04/12

£10.00

+ £2.50 Gift Aid

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Donation by Lucina Godden on 20/04/12

£10.00

+ £2.50 Gift Aid

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Looking forward to tracking your progress...Hope youre wearing lycra :) All the best for the big day. Lots of love from the Green. xxxx

Donation by Anna Green on 19/04/12

£30.00

+ £7.50 Gift Aid

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Best wishes.

Donation by Robert Wilde on 18/04/12

£10.00

+ £2.50 Gift Aid

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Good Luck james! Nick & josie gage & josie's mum x

Donation by joanne waterman on 17/04/12

£50.00

+ £12.50 Gift Aid

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I really fancy you x

Donation by James Wilde on 16/04/12

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You are my Hero!

Donation by David and Adrienne on 16/04/12

£50.00

+ £12.50 Gift Aid

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Good luck James! X Elena, Will, Kate, Tom and Emily

Donation by Elena Dalrymple on 13/04/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£978.00
  • Offline donations£5,565.80
  • Text donations£19.00
  • Total raised£6,562.80
  • Gift Aid£201.75

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