James's Bupa Great North Run for the SMA Trust

James Macbeth is raising money for The SMA Trust
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Bupa Great North Run 2014 · 7 September 2014 ·

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

Hello!  You are probably looking at this because either Anya or Myself has nagged you for sponsorship money but please read on as the cause I am supporting is a very worthy one.

SMA is a genetic neuromuscular disease, which means it is inherited and affects nerves responsible for muscle function. Although classified as rare, SMA is the leading genetic killer of infants and toddlers, with approximately 95% of the most severely diagnosed cases resulting in death by the age of 18 months. Children with a less severe form of SMA face the prospect of progressive muscle wasting, loss of mobility and motor function.

1 in 40 people is an SMA carrier, ie approximately 1.5 million people in the UK

1 in every 6,000 births is affected by SMA.

The SMA Trust is the only UK charity solely dedicated to funding medical research into Spinal Muscular Atrophy.

Please help me raise much needed funds and awareness for this charity.

Thanks in advance for any donations, I am sure the prospect of supporting this charity will help me when I am struggling around the 13 miles or 21 kilometres (not sure which sounds shorter)!!

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Donation summary

Total
£205.00
+ £45.00 Gift Aid
Online
£205.00
Offline
£0.00

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