We’re cycling from London to Paris in 24 hours with 150 others to raise money for research into new treatments for Duchenne Muscular Dystrophy (DMD). There's a great website with lots more information - www.duchennedash.com

DMD is the most common fatal genetic disorder to affect boys. The Duchenne Children’s Trust was set up by Emily and Nick Crossley, after their son, Eli, was diagnosed.

Those with the disease cannot produce dystrophin, a protein necessary for muscle survival and as a result, every skeletal muscle in the body deteriorates. At the moment DMD is 100% fatal with no cure; most children die in their early 20’s from heart or respiratory failure and every child ends up in a wheelchair by the age of 12- 14.

However, several research projects are offering real promise that a substantial treatment and possible cure for the disease could be developed. As a result every penny of the money being raised is being spent on research. The Duchenne Children’s Trust is funding 8 projects in the UK and another in Holland. They're also working with politicians, scientists, regulators, and pharmaceutical companies to push the case for quicker access to new drugs for those who need them.