My story

Thanks for taking the time to visit my JustGiving page.

A few words from Seth's dad about the work Anthony Nolan does and the impact they had on his family

 

In April 2008 Seth was diagnosed with a blood cancer called Acute Myeloid Leukemia. The day after he was diagnosed he started 6 months of Chemotherapy. He was two years old. During his treatment his Consultants carried out tests on the cancer to give an indication about how well the Chemotherapy was likely to work. Unfortunately the results were not good, the Chemotherapy was unlikely to be effective and he needed a stem cell (bone marrow) transplant to give him the best chance of a cure.  

Every one of us has billons of stem cells in the bone marrow inside our bones. These cells which produce all the blood in our body throughout our lives. The transplant aims to remove all of these cells, including the ones which are cancerous and replace them with new stem cells from a closely matching donor. The hospital searched databases worldwide for a donor, they were pretty hopeful that one would be found, however none were.  So without a donor Seth just had the Chemo to rely on.  

At the end of treatment initially the signs were good and we hoped he had got away with the slim chance he was given of the Chemotherapy working.  Sadly in January 2009 his cancer relapsed. He started more Chemotherapy and more searching of databases took place, no living donors had become available but thankfully the Anthony Nolan Trust found a lifeline for him. The stem cells from the umbilical cord of a baby born in Germany were a good enough match for him to have a transplant. The chemotherapy continued for a few more months, ending with a final dose which killed off all of his stem cells and with them we hope the cancer forever. 

 

On April the 19th 2009 23ml of blood rich with stem cells, were transplanted into him. This is a difficult point in the transplant process, the chemo had left him very unwell and with none of his own stems cells left to make blood, he relied upon daily blood transfusions for weeks to keep him alive. Eventually we started to see signs of the new stem cells beginning to work, but as they did a common side effect of the transplant also started, Graft vs. Host Disease. His new blood saw his body as a foreign object and began to attack it as if it was a virus. This caused the most horrendous pain, prevented him from eating and damaged his lungs, liver and gut.  He had IV morphine to manage the pain and was fed through a tube into his tummy and IV line for months.  

Very slowly he began to get better and after months in hospital was allowed home.  A year after the transplant he was still unwell, but he finally stopped being fed through the tube and was strong enough to go to playschool again. He has continued to recover and in September this year started school. He still has a few side effects and the time in hospital has left him a little shy compared to other children, but other than that he is a normal, happy little boy. 

If it were not for the kindness of a mother donating her babies umbilical cord and the Anthony Nolan Trust Seth would not be here today. Today there are over 2000 people in the UK who like Seth cannot find a donor. To help these people it's easy to join the register of donors, all it takes is a sample of spit and if you are lucky enough to be given the chance of saving someone's life through donating, it's as easy as giving blood.   

So please dig deep and donate now.

My charity

Anthony Nolan

Anthony Nolan

Charity Registration No. in England and Wales 803716, Scotland SC038827

Anthony Nolan is a pioneering charity that saves the lives of people with blood cancer. Every day, we use our register to match remarkable donors willing to donate their blood stem cells to people who desperately need lifesaving transplants.

Donations 114

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Good luck, via Debbie Harkins Facebook page, a worthy cause xx

Donation by Adelle on 12/01/11

£10.00

+ £2.82 Gift Aid

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hi Jane! Good luck! What a great cause to donate to! X

Donation by Becky 1973 on 12/01/11

£10.00

+ £2.82 Gift Aid

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keep up the good work! you are a little crazy to do this but have the biggest heart and an inspiration to us all! love you forest x

Donation by Helen, Marcus, Ben and Evie x on 11/01/11

£20.00

+ £5.64 Gift Aid

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I hope Seth gets the help he needs. keep us posted

Donation by Greg Lord on 11/01/11

£5.00

+ £1.41 Gift Aid

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Good luck hun, it's a fantastic thing you are doing for such a worthy cause x

Donation by Alix Kite on 11/01/11

£30.00

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Touched by your story. Retweeted and posted to facebook. Best of luck

Donation by signutopiabyra on 11/01/11

£13.00

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Read your story from a retweet, good luck:-) wishing you Eddie Izard mental toughness

Donation by Kevyn Steel on 08/01/11

£50.00

+ £14.10 Gift Aid

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It's making me tired just thinking about it. Really enjoying your blog, good luck! @approachmarket

Donation by Sarah Cooper on 07/01/11

£10.00

+ £2.82 Gift Aid

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Jane, lovely story, I ran the GNR for my friend whose daughter has CF, because Im so thankful for my healthy daughter! Good luck, well deserved!

Donation by Ally Donathy on 06/01/11

£10.00

+ £2.82 Gift Aid

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Train sensibly and often and enjoy x

Donation by Andrews family on 06/01/11

£10.00

+ £2.82 Gift Aid

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Well done, good luck and will see you at the starting line ;) @Kahanka

Donation by Miroslava Moore on 06/01/11

£10.00

+ £2.82 Gift Aid

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*waves pom poms* Well done Jane you are doing an amazing thing Love Sara and Evie xxxx

Donation by sara davies on 06/01/11

£20.00

+ £5.64 Gift Aid

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Good luck! All the very best.

Donation by Debbie Wyer (Summer-Louise) on 06/01/11

£10.00

+ £2.82 Gift Aid

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WISHING YOU GREAT GOOD LUCK! FROM EMMA X

Donation by EMMA CLEMPSON on 05/01/11

£50.00

+ £14.10 Gift Aid

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Go for it Janey Jane!! Thinking about you and my knees are hurting!! xxx

Donation by Lisa Scales on 05/01/11

£10.00

+ £2.82 Gift Aid

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We are always a child away from challenges. Hope this small token helps with those going through theirs at the moment.

Donation by HerMelness Speaks on 05/01/11

£20.00

+ £5.64 Gift Aid

Donation by Anonymous on 04/01/11

£10.00

+ £2.82 Gift Aid

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Good luck Jane - rather you than me ;o) From Sara and Andy xx

Donation by Sara Headworth on 04/01/11

£20.00

+ £5.64 Gift Aid

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Good luck Jane.

Donation by aileen moore on 03/01/11

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Great thing to do. Go for it and enjoy. I will be cheering you on! x

Donation by HelloitsGemma on 03/01/11

£20.00

+ £5.64 Gift Aid

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Very best of luck Jane xx

Donation by Tracy Topham on 03/01/11

£5.00

+ £1.41 Gift Aid

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Donation by Linda Allsopp on 03/01/11

£50.00

+ £14.10 Gift Aid

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Good Luck Jane - lovely thing to do for such a worthy cause and a very very special boy - my nephew Seth x

Donation by Clare Christer on 02/01/11

£20.00

+ £5.64 Gift Aid

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Good luck, you'll do fab ...

Donation by James Tansley on 02/01/11

£10.00

+ £2.82 Gift Aid

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Good luck! xxx

Donation by jill mansell on 02/01/11

£50.00

+ £14.10 Gift Aid

Donation summary

  • * Online donations£2,456.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£2,456.00
  • Gift Aid£600.37

* Charities pay a small fee for our service. Find out how much it is and what we do for it.