My story

Hello! I'm Alfie and when I was very little the doctors told my Mummy and Daddy that I had something called Nystagmus.

Nystagmus is an involuntary movement of the eyes which often seriously reduces vision. Few people with nystagmus can drive and most encounter some difficulties in every day life, education and employment.

I don’t let anything stand in my way and am showing everyone what a little star I am! But my mummy and daddy know that when they need support and information they can turn to the Nystagmous Network. The Network raises Awareness of the condition, can help with Benefits advice, works with specialist teachers so that people with nystagmus get the best out of education with the least possible fuss, advise on employment, organises and supports fundraising, offers telephone support and the chance to talk to others with nystagmus or to the parents of children with nystagmus, provide Information, organises events where you can talk to others, publish a quarterly 16 page newsletter with research news plus personal experiences of nystagmus, fund and encourage research, supply speakers to talk about nystagmus and its effects for people working in education, health and social services, organise talks for parents and people who have nystagmus and provide a Website forum.

All this is very important when you have a special little boy like me who is going to meet more challenges than other children. As well as supporting my mummy and daddy now the nystagmus network will help me when I grow up but to do that they need funding to provide all these important services that are so needed by families like mine.

So please support my Mummy who is doing the Three Peaks Challenge to raise money for the Nystagmus Network by making a donation.

Thank You!

Alfie xx


My charity

Nystagmus Network

Nystagmus Network

Charity Registration No. 803440

Nystagmus is a serious, incurable eye condition. Few people with nystagmus can drive and most have difficulties in everyday life, work and education. You can be born with nystagmus or develop it in adulthood. NN provides information, support and advice as well as funding and encouraging research.

Donations 26

text donation

Donation by Anonymous on 25/05/12

£5.00

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You're doing brilliantly Jane - well done!

Donation by CHRISTINE BARNETT on 15/05/12

£10.00

+ £2.50 Gift Aid

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Big Thank you to Paula & Amanda x

Donation by Paula Herrod & Amanda Kay on 14/05/12

£15.00

+ £3.75 Gift Aid

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good luck babby love you xxxxx

Donation by neil fox on 08/05/12

£20.00

+ £5.00 Gift Aid

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VERY kindly donated by David Lynch ! SCOTLAND Thank you so much xx

Donation by David Lynch on 08/05/12

£500.00

+ £125.00 Gift Aid

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A massive thank you to a lovely gang from Wolverhampton xx

Donation by Linda Cooper & Friends on 30/04/12

£50.00

+ £12.50 Gift Aid

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Good Luck Jane!!!

Donation by Mark Hiley on 27/04/12

£10.00

+ £2.50 Gift Aid

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Donation by Martin Howarth @ Safety Kleen. Thanks

Donation by neil fox on 24/04/12

£15.00

+ £3.75 Gift Aid

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Gwaaaaarn Jane!! Good Luck, we're really proud of you xxxxx

Donation by Gary and Michelle xxx on 12/04/12

£50.00

+ £12.50 Gift Aid

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The best of luck Jane xxx

Donation by Frances on 05/04/12

£10.00

+ £2.50 Gift Aid

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Donation @safetykleen

Donation by neil fox on 12/03/12

£5.00

+ £1.25 Gift Aid

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Good luck duck!! xx

Donation by Anonymous on 27/02/12

£10.00

+ £2.50 Gift Aid

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Best wishes from Catherine

Donation by Anonymous on 24/02/12

£5.00

+ £1.25 Gift Aid

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Well done Jane we are proud of you Love you Mum and Dad x

Donation by Anonymous on 24/02/12

£20.00

+ £5.00 Gift Aid

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good luck jane

Donation by Darrell Nundy on 08/02/12

£5.00

+ £1.25 Gift Aid

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Keep up the good work with the training x

Donation by neil fox on 08/02/12

£20.00

+ £5.00 Gift Aid

Donation by sheila williams on 04/02/12

£50.00

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Good luck Jane:-)

Donation by Nicola Ainsworth on 03/02/12

£5.00

+ £1.25 Gift Aid

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Donation from Leanne Earnshaw

Donation by neil fox on 03/02/12

£10.00

+ £2.50 Gift Aid

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A HUGE good luck, very brave for tackling this one....what next, the great wall of china trek? lol xxxx

Donation by Michelle Senior on 03/02/12

£5.00

+ £1.25 Gift Aid

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Good luck Jane, you are a little ★ xx

Donation by Claire Bowling on 03/02/12

£10.00

+ £2.50 Gift Aid

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I'ii be with you Jane xx

Donation by Daddy on 11/01/12

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Donation from Auntie Sylvia and Bridget

Donation by Jean Morris on 11/01/12

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Well done Jane I know you can do it xx

Donation by Mummy on 10/01/12

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Good luck Darling I love you and I'm so proud of you for what you are doing for our boy xx

Donation by Neil Fox on 07/01/12

£20.00

Donation summary

  • * Online donations£905.00
  • Offline donations£0.00
  • Text donations£5.00
  • Total raised£910.00
  • Gift Aid£201.25

* Charities pay a small fee for our service. Find out how much it is and what we do for it.