David is the son of my friends and he has SMA. 

Spinal Muscular Atrophy (SMA) is a devastating, genetic disease that results in muscular weakness, leading to severe disability and the possibility of premature death. 

It is a leading genetic killer of infants and toddlers, with 50% of the most severely diagnosed cases resulting in death by the age of two.

SMA is currently incurable and often fatal.

1 in every 6,000 births is affected by SMA

1 in every 40 people is a carrier of the defective gene that causes SMA and a child of two carriers has a one in four chance of developing SMA

But not all is bad news – for the 1 time ever, there is a drug being tested and there are more in the pipe line. The SMA Trust is the only trust in the UK that is funding SMA drug trials, so that for people like David, one day… dreams might become reality.

I will be running for Team David in the Bath and the Reading Half Marathons and hope you will support me for this worthy cause.

Please dig deep and donate now.