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Jasmin - Half Marathon Bath and Half Marathon Reading

Jasmin Frydman is raising money for The SMA Trust
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The SMA Trust - MAD Challenge UK · 31 December 2011 ·

SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

<p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><strong><span style="font-size: 10pt; font-family: Arial;"><a href="http://www.youtube.com/watch?v=Z0H1aMYu80I">David</a>&nbsp;is the son of my friends and he has SMA.&nbsp;</span></strong></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;"><strong>Spinal Muscular Atrophy</strong>&nbsp;(</span><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">SMA) is a devastating, genetic disease that results in muscular weakness, leading to severe disability and the possibility of premature death.&nbsp;</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">It is a leading genetic killer of infants and toddlers, with 50% of the most severely diagnosed cases resulting in death by the age of two.</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">SMA is currently incurable and often fatal.</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">1 in every 6,000 births is affected by SMA</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">1 in every 40 people is a carrier of the defective gene that causes SMA and a child of two carriers has a one in four chance of developing SMA</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><strong><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">But not all is bad news</span></strong><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;"> &ndash; for the 1 time ever, there is a drug being&nbsp;</span><span style="font-family: Arial; font-size: 13px;">tested and there are more in the pipe line.&nbsp;</span><span style="font-family: Arial; font-size: 13px;">The <a href="http://www.smatrust.org/">SMA Trust</a> is the only trust in the UK that is funding SMA drug trials, so&nbsp;</span><span style="font-family: Arial; font-size: 13px;">that for people like David, one day&hellip; dreams might become reality.</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">I will be running for Team David in the Bath and the Reading<span style="mso-spacerun: yes;">&nbsp;</span></span><span style="font-family: Arial; font-size: 13px;">Half Marathons and hope you will support me for this worthy cause.</span></p> <p class="MsoNormal" style="margin-bottom: .0001pt; line-height: 19.0pt; mso-pagination: none; mso-layout-grid-align: none; text-autospace: none;"><span style="font-size: 10.0pt; mso-bidi-font-size: 14.0pt; font-family: Arial; mso-bidi-font-family: Arial;">Please dig deep and donate now.&nbsp;</span></p>

Donation summary

Total
£1,121.00
+ £224.00 Gift Aid
Online
£1,121.00
Offline
£0.00

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