Jess, Dan and Kev - Lands End to John O Groats Virtual Challenge

Jessica Hallybone is raising money for Reverse Rett

Participants: Dan Needham and Kev Lindsey

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The Conqueror Virtual Challenge - Lands End to John O’Groats · 30 July 2020

Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Story

Thanks for taking the time to visit our JustGiving page.

I saw the Virtual Challenge of running the length of the UK on Instagram, and thought ‘who would be crazy enough to do this with me? Dan and Kev of course!’ 

So between us, we will be running 5k a day, until we have ran the distance of Lands End to John O’Groats...1083 miles! 

We will be doing it in aid of Dan’s niece Lily, who is now 8 years old, and is still suffering from the effects of Rett Syndrome. 

Any money donated will go straight to Reverse Rett, who continue to help families affected by the life restricting Rett Syndrome, and who are working hard to speed treatments and find a cure. 

Rett Syndrome is a neurological or brain disorder which affects apparently healthy little girls around the age of 6-18 months. The condition usually follows a path of regression where skills, such as speech, hand use, and mobility, are lost.

Lily is no longer able to walk, talk, use her hands purposefully or eat/drink orally. She struggles with her breathing and also has epilepsy, suffering with seizures regularly.

So please dig deep and donate a few pounds. We’d love to get £1083 for 1083 miles!!

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Donation summary

Total
£1,635.00
+ £360.00 Gift Aid
Online
£1,635.00
Offline
£0.00

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