Jo Lilley

Jo's page

Fundraising for Cystinosis Foundation UK
£350
raised of £350 target
by 23 supporters
Donations cannot currently be made to this page
Event: Kingston Breakfast Run, on 11 April 2010
Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
We help and support cystinosis sufferers to increase understanding of cystinosis

Story

Hi all

I'm running the Kingston Breakfast Run (8.2 miles) on 11th April 2010 to raise money for the Cystinosis Foundation UK.  I only recently became aware of this charity as my friend's god-daughter has Cystinosis.  The disease is not well-known and children will have to undergo organ transplants and they often do not survive to adulthood.  This charity raises money for research and to raise awareness and offer support. 

Please be as generous as you can with your donations.

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Thank you. xxx

About the charity

Cystinosis Foundation UK

Verified by JustGiving

RCN 1074885
Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders

Donation summary

Total raised
£350.00
+ £72.63 Gift Aid
Online donations
£320.00
Offline donations
£30.00

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