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Jo Lilley is raising money for Cystinosis Foundation UK
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Kingston Breakfast Run · 11 April 2010 ·

Cystinosis Foundation UKVerified by JustGiving
RCN 1074885
Provide support to anyone diagnosed with cystinosis, as well their families and friends Highlight the disorder to the medical profession and the wider community Support research into the treatment of cystinosis Work with other organisations to understand more about metabolic disorders

Story

Hi all

I'm running the Kingston Breakfast Run (8.2 miles) on 11th April 2010 to raise money for the Cystinosis Foundation UK.  I only recently became aware of this charity as my friend's god-daughter has Cystinosis.  The disease is not well-known and children will have to undergo organ transplants and they often do not survive to adulthood.  This charity raises money for research and to raise awareness and offer support. 

Please be as generous as you can with your donations.

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Thank you. xxx

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Donation summary

Total
£350.00
+ £72.63 Gift Aid
Online
£320.00
Offline
£30.00

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