ALD Life is a registered charity (no 1106008).  We aim to raise awareness and funds for research.  The disease affects young boys who often die at a very young age.  Only around 200 people in the UK are affected by this condition and the mortality rate is around 30%.  The remainder are likely to suffer severe mobility problems or for boys it will be that they can only communicate through nodding and are wheelchair bound etc.

There is currently no cure and while there are small activities under way it is a constant battle to secure funds.  The main reason is that while the impact of the problem is massive, the numbers are small which means it cannot compete with bigger higher profile diseases in getting the Government or drug companies to invest in research and development.  Our charity are leading the way in terms of supporting patients and carers but keen to take ourselves to the next level of being able to actually fund research and hopefully you can help.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.