Joe Mountain

Joe and Johnny's 230km Jungle challenge for MSA

Fundraising for Multiple System Atrophy Trust
£11,649
raised of £10,000 target
by 151 supporters
Donations cannot currently be made to this page
Participants: Joe Mountain, Jonathan Hall
Multiple System Atrophy Trust

Verified by JustGiving

RCN 1137652
We support families affected by MSA to increase knowledge of this awful disease

Story

Update 8th February 2013

Our wonderful Mum, Nana and friend to so many, Sara passed away peacefully this morning.We would like to thank everyone for their support.

She was one in a million and touched the lives and hearts of so many people and we were truly blessed to have been part of her life.

She will live on in our memory and always be part of us.

Rest in peace Sara, we love you from the bottom of our hearts now and always.

xxx

 

 

 

Update 8th June 2012 - We made it!

I'm pleased to report that Johnny and I successfully returned from the Jungle on Saturday having been bitten, stung, cut, grazed, thorned & blistered with the loss of just 4 toe nails....

Thanks to everyone who donated before we went. For those who promised after we got back, now is your chance!

Again, thanks for all your support - we wouldn't have made it without it.

The challenge? ...the 230 km Jungle ultra - May 2012
This brand new challenge has been devised to be the hardest footrace on the planet. A 6 day, 230k run in unchartered Peruvian jungle, self sufficient, carrying all food and equipment to sleep through swamps, rivers and 100% humidity. Day 5 alone is 90km - more than two full marathons on feet that will have already run 100km, and will not have been dry for 4 days and covered in blisters.

The cause? ...MSA Trust
3 years ago my wonderful step Mum, Sara was diagnosed with Multiple System Atrophy (MSA), a rare neurological disease. This is the most cruel of diseases - life expectancy after diagnosis is from 2 to 8 years. It is untreatable and the patients lose all physical abilities. Power of movement of limbs, speech, ability to swallow, sight and eventually all physical ability is lost. The mind remains fully active throughout. There is no cure or hope.

Sara is lucky in that she has amazing parents and close family that provide 24/7 support and care needed.

Many are not so lucky and with such little known about the disease, support from the NHS is limited.

Multiple System Atrophy Trust is the UK’s support and information service for people with multiple system atrophy, their families and carers. It also funds research into the treatment and causes of MSA.

They are a great charity and all money donated goes directly in helping them provide the service to the people and families that need it.

Your support and knowledge of the cause we are running for will be what gets us through (hopefully).

Thanks, Joe and Johnny

About the charity

Multiple System Atrophy Trust

Verified by JustGiving

RCN 1137652
The Multiple System Atrophy Trust is the only UK charity dedicated to providing specialist support to all those affected by MSA; a life-limiting neurodegenerative brain disease. We provide MSA nurses, a telephone helpline and regional support groups. We also fund research into both a cause and cure.

Donation summary

Total raised
£11,648.21
+ £1,484.00 Gift Aid
Online donations
£11,548.21
Offline donations
£100.00

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