Raised: 28%
Target: £7,000.00
Raised so far: £1,953.00
Donate now

My story

 
Thanks for taking the time to visit my JustGiving page.

 

To all those who have taken a step back or have an uncontrollable urge to laugh, yes, it is true… I am running the NYC marathon in November. Here is why:

 

For nearly two years now I have been going to visit a young man of 20 who has Familial Dysautonomia, it was the first time I had heard about the genetic disease. FD affects male and female Jewish babies, primarily causing dysfunction of the autonomic and sensory nervous systems. This means he is not capable of normal swallowing and digestion but is fed by a tube directly into his stomach and has poor regulation of blood pressure and body temperature. Furthermore he has Scoliosis (early spinal curvature), and had arthritic and infected hips that have consequently been operated on and replaced. What this has meant is that he has not been able to walk for the last three years and it will take a dedicated amount of care and attention from professional physiotherapists to give him the opportunity to learn to walk again. He also has learning difficulties and requires a lot of attention and therapy with his speech, he will often rely on his mother or close members of his family to 'translate' what he is saying to others.

 

I have chosen to raise money through Camp Simcha.  Camp Simcha exists to enhance quality of life for Jewish children with Cancer and other life threatening illnesses. It is through Camp Simcha's big brother/sister programme, which encourages volunteers to commit to regular visits and relationship building, that I first came in to contact with this young man. This organisation has been instrumental in truly enhancing his life and the lives of others and I would urge you to find out how you can help contribute to this most valuable organisation whether as a volunteer or as a donor. To find out more please visit www.campsimcha.org.uk

 

Daily life is a struggle but his quality of life can be improved dramatically if he is given the therapeutic treatment available to help him to rebuild his muscles and learn to walk. He is bright and sensitive and equally deserves the opportunity to improve his speech giving him the confidence to communicate with others.

 

I am aiming to raise £7,000 and am willing to run 26 miles to prove to you just how worthwhile I think this cause is. £5,000 will pay for the physiotherapy and speech therapy needed for an entire year.  The entire amount will be distributed through the supervision of Camp Simcha a registered charity in the UK. The remaining £2,000 will be donated directly to Camp Simcha to contribute to a dedicated arts & crafts group for young people with medical problems. 

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

 

So please dig deep and donate now.

 

Yours sincerely

Joel

 

Well Done! Donation by Andrew Zucker 27/11/09  

£180.00 + £50.77 Gift Aid

Well done Joj Donation by Laylay 12/11/09  

£50.00 + £14.10 Gift Aid

Good on you Joel Donation by Anonymous 05/11/09  

£150.00 + £42.31 Gift Aid

wa ni ni woooooo ziiminana nama na woooo... well done achi. much love and respect Donation by Adam Offenbach 03/11/09  

£40.00 + £11.28 Gift Aid

Proud of you dude Donation by Jonny Hornig 01/11/09  

£20.00 + £5.64 Gift Aid

Hope all went (is still going well)! An incredible cause - good luck! Donation by Adam Lobatto 01/11/09  

£25.00 + £7.05 Gift Aid

Go for it Joel! Behatzlacha Donation by eli shine 31/10/09  

£20.00

remember the days when i used 2beat u in running,swimming,cycling,football?well haven't done a marathon,so u gain my respect 4this1 Donation by Daniel & Rivkah Wolfson 31/10/09  

Donation by Joel Stanley 30/10/09  

£5.00 + £1.41 Gift Aid

Donation by Anonymous 30/10/09  

£10.00

good luck Reb Yoilish. Impressive stuff! Donation by Andrew Savage 30/10/09  

£20.00 + £5.64 Gift Aid

Good luck! x Donation by Nikki 28/10/09  

£10.00

wish I could be there :) don't trip! Donation by Stacy Tasman 28/10/09  

£25.00

good luck artbuddy :)! x Donation by jennifer martin 28/10/09  

£10.00

mazal u'bracha Donation by david rosenberg 28/10/09  

£180.00 + £50.77 Gift Aid

great seeing you at Beiders last shabbat! :) Donation by Gideon Shaw 27/10/09  

Have fun on the run. Hope your 'support' shorts do the job!!! - natasha Donation by natasha cowan 26/10/09  

£10.00 + £2.82 Gift Aid

run joel...run...! good luck :) Donation by Shula Coleman 26/10/09  

Donation by anonymous 22/10/09  

You make me weep my brave little Mishkan Maker... Donation by Anonomous Poet 20/10/09  

£175.00

Donation by Michael Freedman 20/10/09  

Donation by jonathan moradoff 09/10/09  

£20.00 + £5.64 Gift Aid

hang on is this joel from london via holland via france via yemen via tunisia via the first temple in jerusalem?????? Donation by Peretz Tabor 09/10/09  

Good luck Joel !! Donation by Rosemary & David Garcia 08/10/09  

Donation by Anonymous 05/10/09  

£500.00 + £141.03 Gift Aid

joel - we're behind you all the way! (well - obviously not literally!) cant wait to see ur blisters!! - lol michelle, danny & kids x) Donation by michelle barnett 27/09/09  

£40.00 + £11.28 Gift Aid

No Joel, Let ME know if you want help making a compilation for your run - it will be MUCH better that Imogin's xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx Donation by jason & laura benzion 25/09/09  

Let me know if you need a hand with a playlist for the big day (Sting will only take you so far...) x Donation by Imogen Landy 24/09/09  

ginger nerd Donation by hustler 24/09/09  

xx Donation by Gabby Torrance 24/09/09  

£15.00
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* Total raised online: £1,953.00
  Offline donations: £0.00
  Gift Aid plus supplement: £456.92

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