Thanks for taking the time to visit my JustGiving page.

A team of 8 of us are taking on this sponsored challenge to raise vital funds for research into MeCP2 Duplication Syndrome. 

Sadly, my Grandson Blake was diagnosed with this at 3 weeks old. It is a cruel and debilitating syndrome which means he will probably never walk or talk, have severe, uncontrolled epilepsy and suffer from recurrent chest infections which can be fatal. This is just a brief summary and he will undoubtedly have a whole host of other problems. 

However, there is HOPE! Scientists are very positive that a cure or at least, treatments can be found within the next decade. These studies require a huge amount of funds and we are desperate to get them funded as soon as possible to give Blake the chance of a happier, healthier future. There is no government funding into this condition, so the onus is on family and friends to raise the money. 

I urge you all to spare a few £'s to help wee Blake and all the others who suffer from this awful condition.

Many thanks,

John

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.

So please dig deep and donate now.