Story
Thanks for taking the time to visit my JustGiving page.
I'm running the London Marathon on April 25th 2010 and raising money for the Wolf Hirschhorne Syndrome Trust. This is a small UK charity that helps children and their familes who suffer from this rare genetic disorder. My daughter, Jemiah will be 6 just days after I run the marathon and she has the Wolf Hirschhorne syndrome. She has been on life support five times and has had nine operations - including having here eyes sewn shut to save her eyesight. She is a bright plucky and happy child and fills the lives of those around her with great joy.
Paula (mum) and I do not know what the future may hold for Jemiah, but we are greatful that she is in our lives, and greatful for the support, kindness and advice that the Wolf Hirschorne Syndrome trust offer us, and familes with children like Jemiah. I hope you feel able to offer your support to this fantastic charity.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.