Ever heard of Nephrotic Syndrome? Well I hadn't and I still dont know many people who have heard of it....
NS is not itself a disease, but a condition that is often caused by any of a group of diseases that damages the tiny blood-filtering units (glomeruli) in the kidneys, where urine is made.
The Science bit...The kidneys clean the blood by filtering out excess water and salt and waste products from food. Healthy kidneys keep protein in the blood; this protein dissolved in the blood maintains the thickness of the blood and its ability to draw water from the tissues. But kidneys with damaged filters may let protein leak into the urine (proteinuria). Normally, a person loses less than 150 mg of protein in the urine in a 24-hour period. A person with nephrotic syndrome will lose around 25 times the normal amount!
As well as the symptoms of the kidney disease itself, and the side effects of steroid treatment (weight gain, retard growth..), a significant proportion of sufferers, many of them children, ultimately end up with kidney failure, requiring dialysis and transplantation
There is no known cure for NS, which is why I NEED your help not only in donations for the NeST, but raising much needed awareness of Nephrotic Syndrome (NS). My beautiful niece Aoife (6yrs old) suffers with this condition and I pray every day that she and many children like her will soon lead a normal healthy life without NS.
Thanks for taking the time to visit my JustGiving page. Donating through JustGiving is simple, fast and totally secure. So please please....pleeeeease dig deep and donate what you can.
Thanks a million.....John & family
COMPLETED BUPA MANCHESTER 10K IN MAY, NOW TRAINING FOR THE BUPA GREAT NORTH RUN ON 18TH SEPTEMBER - THANKS FOR YOUR CONTINUED SUPPORT, JOHN
