My story

Dear All,

I'm running the Virgin London Marathon again this year to raise money for CdLS Foundation UK and in memory of Sienna Howard who sadly passed away last August. Sienna was the foster daughter of Andy, a good friend and colleague.

I asked Andy if he would write a little piece about Sienna for my fundraising page and his comments are below:

"Sienna's CdLS severely compromised her health. She'd had major heart surgery to correct an abnormality and she had a cleft palate, which meant she was fed through a tube. Her breathing had to be monitored throughout the night, and she also had hearing difficulties and an overall delay in her development.  She had to take lots of drugs every day, but she was an amazing and inspiring little girl, who was always smiling and making great progress.  Sadly, her condition made her vulnerable to infections and, tragically, she died of pneumonia last summer at the age of 21 months. We all miss her terribly, but she had a massive impact on so many people in her short life. She loved having people around her and parties and events, so she would have loved the spectacle and atmosphere of marathon day!  Please support Jordan so that the the CdLS Foundation can continue to support research and children like Sienna and their families."  

Because of the rarety of the condition, essential fundraising for the charity is often difficult, and even the smallest donations will go a long way to assist in the work that the CdLS does.

I would really appreciate it if you could make a donation,no matter how large or small, for the CdLS and in memory of little Sienna. I could not think of a better way to pay tribute to her than to offer support this great cause.

It's easy to donate online with a debit or credit card - just go to my page:

http://www.justgiving.com/JordanLeake

Your donation will go straight to CdLS Foundation UK and they can reclaim Gift Aid if you are a UK taxpayer, so your donation is worth even more.

Thank you for your time and your support to this exceptional cause.

Best wishes,

Jordan

My charity

CdLS Foundation UK

CdLS Foundation UK

Charity Registration No. 1054033

The CdLS Foundation exists to ensure early and accurate diagnosis of Cornelia de Lange Syndrome ; promote research into the causes and manifestations of the syndrome and help people with a diagnosis of CdLS to make informed decisions throughout their lifetime

Donations 99

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Well done Jordan - Andy and Karen told me you were doing the marathon in memory of Sienna

Donation by Trish Stewart on 24/06/12

£20.00

+ £5.00 Gift Aid

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well -done a good cause!

Donation by Mark Khan on 15/05/12

£10.00

+ £2.50 Gift Aid

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Well done Jordan (and sorry its late as well!). You have raised a lot of money for a worthy cause.

Donation by Lorraine Patrinos (GLL) on 10/05/12

£20.00

+ £5.00 Gift Aid

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Glad to support leafy and caroline

Donation by Cb Mcguire on 05/05/12

£10.00

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Congratulations for finishing, a great effort and a great cause. Sorry its late!

Donation by Chris Symons (GLL) on 27/04/12

£25.00

+ £6.25 Gift Aid

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Proud of you big boy xxxx

Donation by Jameo on 23/04/12

£25.00

+ £6.25 Gift Aid

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Well done Jordan. Sorry i couldn't meet up at the finish however am sure you enjoyed the pint!!

Donation by Russell Turnbull on 23/04/12

£20.00

+ £5.00 Gift Aid

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We're cheering you on from home as we speak!xx

Donation by Lucy Bond on 22/04/12

£10.00

+ £2.50 Gift Aid

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Well done mate!

Donation by Bernard Keavy on 22/04/12

£20.00

+ £5.00 Gift Aid

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Well done mate. Great cause for a great little girl. xx

Donation by The Brices on 22/04/12

£5.00

+ £1.25 Gift Aid

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Its really great you are doing this Jordan! Good Luck today!!

Donation by Amy Brice on 22/04/12

£5.00

+ £1.25 Gift Aid

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Good luck Jordan

Donation by John Morey on 22/04/12

£25.00

+ £6.25 Gift Aid

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Good Luck Jordan tomorrow, well done for supporting such a good cause...

Donation by Stuart King on 21/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Northener, try not to get lost or waylaid at any bars en route.

Donation by Michele & Dave Randall on 21/04/12

£20.00

+ £5.00 Gift Aid

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Hope you have an enjoyable run. Best of luck.

Donation by Jill, Daniel & David in Devon on 21/04/12

£30.00

+ £7.50 Gift Aid

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Good Luck with the run will be watching from sofa, with a cold beer!!!!

Donation by graham crosby on 21/04/12

£10.00

+ £2.50 Gift Aid

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Jordy, here's that £50 you lent me. Good luck

Donation by Mossy and Lauren on 20/04/12

£50.00

+ £12.50 Gift Aid

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Great cause in memory of Sienna. Enjoy the run. I'll cheer you on.

Donation by Tim McCarthy on 20/04/12

£10.00

+ £2.50 Gift Aid

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When the going gets tough, think of Sienna and you'll find that bit extra. Thanks Jordan, for the fantatic amount you have raised in Sienna's memory.

Donation by The Howard, Travis and Bindon families on 20/04/12

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Jordan Best of luck in your run - for a great cause Cheers Nick

Donation by Nick Evans on 19/04/12

£25.00

+ £6.25 Gift Aid

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Andy Bindon encouraged me to sponsor you - great cause, best of luck!

Donation by Juliette alban-metcalfe on 18/04/12

£10.00

+ £2.50 Gift Aid

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Just do it! - in less than 4 hrs please.

Donation by Bill Rogers on 17/04/12

£110.00

+ £27.50 Gift Aid

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May the Force be with you Jordan.. Hope you have a great day - Run Forrest, Run.

Donation by philip uzzell on 15/04/12

£10.00

+ £2.50 Gift Aid

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Good luck tomorrow, Jordan - and save the drink for afterwards!

Donation by Karen Minikin on 14/04/12

£20.00

+ £5.00 Gift Aid

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Come on Jordy!

Donation by Jennifer Hendriksz on 13/04/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£2,325.00
  • Offline donations£0.00
  • Text donations£0.00
  • Total raised£2,325.00
  • Gift Aid£533.75

* Charities pay a small fee for our service. Find out how much it is and what we do for it.