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DEBRA Surrey Cycle

Julian Blackman is raising money for DEBRA
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DEBRA Surrey Cycle · 12 May 2013 ·

DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Story

Thanks for taking the time to visit my JustGiving page.

On the 12th May 2013 I'm going to cycle 100 kilometres around Surrey taking in the iconic Box Hill (Part of the 2012 London Olympic Road Race course).

Our close friends youngest daughter was born this year with EB. Epidermolysis Bullosa (EB) is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds.
EB is likely to affect 1 in 17,000 live births and it is estimated that there are currently 5,000 people with the condition in the UK. Because EB is an inherited condition (it cannot be caught), which is passed on genetically from parents to children, first time parents often do not know that they are carriers and will have no prior warning that the child will be affected, until birth.

When our freinds they told me what great support DEBRA has given them I wanted to do something to help.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

Donation summary

Total
£945.00
+ £138.75 Gift Aid
Online
£645.00
Offline
£300.00

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