My story

Thanks for taking the time to visit my JustGiving page. I am raising money by running the Brighton Marathon on 15th April 2012.

Just over a year ago I was diagnosed with primary Lymphoedema in my right leg. You can read more about the impact of this condition on me via my blog http://theswellsup.blogspot.com/.

Lymphoedema is a swelling that develops as a result of an impaired lymphatic system. Unfortunately, most of the underlying causes of lymphoedema are irreversible and as such, there is currently no known cure. Left untreated the swelling over time becomes more permanent and the area begins to feel increasingly hard and solid due to the build up of proteins as well as fluid in the tissues.

Correct diagnosis and appropriate treatment is essential (google "lymphoedema" to see the shocking images of what can happen if the condition is left to worsen). Unfortunately, there is still a major lack of medical knowledge and expertise and some people are still told 'there is nothing that can be done to help'. However, with the ceaseless campaigning to raise awareness of the condition by the Lymphoedema Support Network (LSN), more and more people affected by lymphoedema are now able to access effective treatments.

The LSN takes the lead role in educating and supporting other patients with this condition by providing a high standard of information and promoting self-help. Since its inception in 1991, when there was very little information or help available for patients, the LSN has evolved into an independent and influential charity. It is the only national patient-led organisation offering information and support to people with this condition and has a unique understanding of the patients' experience.

In a sea of anxiety after my diagnosis, the LSN provided a much needed safehaven and their wide ranging fact sheets were invaluable in helping me come to terms with, manage and control my condition. The desire to give back to this remarkable organisation is why I am running the Brighton Marathon in April.

The LSN is a membership organisation and receives no statutory funding. The Charity relies solely on membership subscriptions and donations to continue its valuable work. So please dig deep and donate now.

My charity

Lymphoedema Support Network

Lymphoedema Support Network

Charity Registration No. 1018749

The LSN is a national charity that provides information and support to people with lymphoedema. It runs a telephone helpline, produces quarterly newsletters and a wide range of fact sheets, and maintains an up-to-date website. It works to raise awareness of lymphoedema and campaigns for better national standards of care.

Donations 34

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Donation by Louise Blizzard on 27/04/12

£10.00

+ £2.50 Gift Aid

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Awesome - You have achieved so much with this demonstration of your strength and athleticism. "Less is more" will stay as my training moto! Fi xx

Donation by fiona jamie on 18/04/12

£30.00

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Jules Best of Luck - I know you will do well Gerald

Donation by Gerald Ashley on 15/04/12

£26.00

+ £6.50 Gift Aid

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You are an inspiration to us all! Keep smiling Julie Gaz Tom xxx

Donation by Julie Briggs on 15/04/12

£10.00

+ £2.50 Gift Aid

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Good luck JC. As you said it's only 26.2 miles..and don't be listening to any monkeys on the way around the course!! Rache x

Donation by Rachel Weston on 15/04/12

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Have a great day, will be thinking of you :D

Donation by simon underwood on 14/04/12

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Well done! A great blog, cause and fundraising target, and hopefully a great run! I hope you have fun with a spring in your step.

Donation by Katy Moore on 14/04/12

£5.00

+ £1.25 Gift Aid

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Hey Juliette, the very best of luck for Sunday. Will be thinking of you on the day......My love and a big hug......Lyn x

Donation by Linda Gentry on 13/04/12

£5.00

+ £1.25 Gift Aid

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Go jules! I know you'll give it everything. Lots if love Teresa x

Donation by Teresa Dray on 13/04/12

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Hey Jules! Both you and Vicki were amazing to me. I hope you have a great day, and as I did in Siberia enjoy the adventure! Luv ashley x

Donation by ashley baldwin on 13/04/12

£30.00

+ £7.50 Gift Aid

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Donation by Mike Whyte on 13/04/12

£20.00

+ £5.00 Gift Aid

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Best of luck Juliette!

Donation by Jane Blanco on 13/04/12

£10.00

Hey Jules! Good Luck from all of us at Mooch! With the new go faster Mooch haircut were expecting a new personal best! No pressure!

Donation by gary thomas on 13/04/12

£50.00

+ £12.50 Gift Aid

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Good luck Jules and go,go,go xx.....

Donation by Rosalind Coombes on 13/04/12

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Good luck Juliette - you don't do things by halves! L2P is next

Donation by Bertie on 13/04/12

£30.00

+ £7.50 Gift Aid

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I'll be suffering with you, lets hope we both run well. Lots of luck

Donation by Clive Spicer on 12/04/12

£10.00

+ £2.50 Gift Aid

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Looking forward to cheering you on for a change. Wishing you all the best for a great day. Really really proud of you. Love Sharon xx

Donation by Sharon Young on 12/04/12

£10.00

+ £2.50 Gift Aid

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Good luck Jules x

Donation by Anonymous on 12/04/12

Donation by Jeanne Dekerle on 10/04/12

£50.00

+ £12.50 Gift Aid

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Have a great run you amazing Lady, I'll be cheering you on every step of the way...next time I see you you'll have another medal

Donation by Steph Turner on 10/04/12

£20.00

+ £5.00 Gift Aid

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Just goes to prove age and brains don't necessarily go hand in hand! Congratulations - fantastic result.

Donation by Anonymous on 05/04/12

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Have a fab run - don't forget to enjoy it!! Will be cheering you on :-)

Donation by Fiona Powell on 03/04/12

£15.00

+ £3.75 Gift Aid

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Have a great run Jules, hope you really enjoy it. We'll all be rooting for you as you come through zone 2. Chris x

Donation by Chris Naylor on 03/04/12

£20.00

+ £5.00 Gift Aid

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Good luck Jules! I'll be out there shouting for you. Love, Nadia x

Donation by nadia casimir on 03/04/12

£30.00

+ £7.50 Gift Aid

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Just found your story on twitter and I am very happy to support you in your challenges ahead

Donation by tony m on 30/03/12

£20.00

+ £5.00 Gift Aid

Donation summary

  • * Online donations£1,174.00
  • Offline donations£62.00
  • Text donations£0.00
  • Total raised£1,236.00
  • Gift Aid£256.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.