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At 17 months old we found out the most devastating news; our precious little girl has a serious rare genetic life-limiting condition called Spinal Muscular Atrophy (SMA) that means she will never stand, crawl or walk unaided, that a simple cold can be life threatening. She will at some point loose the physical abilities she has already gained - she may stop eating, breathing, lose the ability to lift her arms, be unable to do simple everyday tasks and will need 24-hour care for the rest of her life. No family or child should ever hear these devestating words...

Isabel has recently turned 3 (as she would say "mummy I'm a three-nager her now",  :) despite what she faces she is the most delightful, funny, bright, joyful, gorgeous little girl. She really lights up the room and is full of life, even when her body is stopping her!! Every child deserves a chance... we need a cure!!

For those that know me, will know a few months ago I could just about run a bath let alone run half a marathon, but I WILL do this! Doing this is nothing compared to what Isabel has to deal with every day. So if she can wake up smiling and happy then I will smile all 13 miles of that run thinking of her at every single step.

Thank you for taking the time to read my story, I will keep you all updated on my training. Please donate what you can, every penny will help this amazing charity to find treatment and a cure!! We will SMAsh SMA!!