Kate's page

Kate Priest is raising money for Cystic Fibrosis Trust
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ING New York Marathon 2011 · 6 November 2011 ·

Cystic Fibrosis Trust Verified by JustGiving
RCN 1079049 (England and Wales) & SC040196 (Scotland)
Cystic fibrosis (CF) is a life-shortening genetic condition that slowly destroys the lungs and digestive system. The Cystic Fibrosis Trust is the only UK-wide charity fighting for a life unlimited, when everyone living with CF can look forward to a long, healthy life. www.cysticfibrosis.org.uk

Story

As some of you may or may not know my eldest daughter Abby was diagnosed with CF while in the womb.  Although she had major life threatening surgery at the age of 2 days old to remove a piece of bowel she is fully recovered and as healthy as she can be.  She takes anti-biotics twice a day and physio to keep her lungs as clear as possible but I have detailed below a little bit more about CF :

  • Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
  • Cystic Fibrosis affects over 9,000 people in the UK.
  • Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
  • If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
  • Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
  • Each week, five babies are born with Cystic Fibrosis.
  • Each week, two young lives are lost to Cystic Fibrosis.
  • Only half of those living with Cystic Fibrosis are likely to live past their late 30s.

Below is a link to detailing why they are trying to raise so much money : http://www.cftrust.org.uk/Gene_Therapy_Appeal_update_Monday_26_Sept_2011.pdf

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Donation summary

Total
£335.00
Online
£335.00
Offline
£0.00

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