Story
<p>Thanks for taking the time to visit my JustGiving page. So now I have been to Tanzania and completed the walk. It was a challenge but with my fellow trekkers, such an enjoyable one. We were all raising money for different charities and I have managed to raise the profile of NSPKU- which is great. HOWEVER MY CHALLENGE is not over. I intend to raise my target amount and so will keep on doing fundraising it whatever way I can until I get there.</p>
<p>My niece, Hannah, was diagnosed with Phenylketonuria (<span class="il">PKU</span>) in October 1999. <span class="il">PKU</span> is a rare genetic disorder that means her body cannot tolerate protein. Untreated it can lead to brain damage and severe mental handicap. As us parents know our newborn babies have a routine heel-prick test wthin days of being born. This test is in part for PKU, very few of us are aware of this and Hannah's test came back positive and as a result her condition can now be managed. She is on a strictly controlled low-protein diet with special supplements and can lead a normal, healthy life without the need for drugs or medicines. Hannah is a superb swimmer, (so she tells me!), she practices five times a week and has won lots of medals and a silver cup at galas in the south east. She has represented Surrey schools which means she is one of the top swimmers in Surrey. We are so proud of her.</p>
<p>The NSPKU is an invaluable source of information, guidance and support. The charity funds testing of food for its suitability for PKU sufferers. Testing a new food item costs £155, offering people like Hannah a bit more variety in their diet. £3000 raised would mean that nearly 20 new food items could be tested. It might not sound much but makes a big difference when you want to be able to eat the same foods as your friends.</p>
<p>Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to NSPKU and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</p>
<p>So please dig deep and donate now.</p>
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