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Back in November 2016 my brothers partner rebbeca watts son alex then aged 12) had been complaining of headaches and nausea/being sick over a period of a couple of weeks and was having time off school as a result. After a few trips to see his neurologist it was put down to migraine (he had previously been diagnosed with focal cortical dysplasia causing epilepsy type symptoms).

On 29th November, he woke me up early hours of the morning screaming in pain, holding the right side of his head and vomiting/retching his mum rebbeca settled him down with some painkillers (thinking it was another migraine) only for her to get up a couple of hours later to find him unresponsive and unable to wake him up . After checking him over I noticed he'd been sick in his sleep, his breathing was laboured and his right pupil had blown.... an ambulance was called straight away, who arrived very quickly, and took them straight down to Bristol Children's Hospital a&e. He was attached to many wires, a breathing tube inserted and taken for a CT scan and straight into emergency surgery. He'd had a bleed on the brain!  Rebbeca was told by the surgeon that they removed the clot caused by the bleed along with a large mass, of which a biopsy was sent off for testing. It was in the same area as his cortical dysplasia!
He made a quick recovery and only spent 5 days in hospital, and didn't need any additional help.there where not 100% sure, and it's not been confirmed, but They where thinking that having the cortical dysplasia meant his brain had already rewired itself anyway... so he didn't need any form of rehabilitation.

A week after he was discharged they were called back into the hospital to see a doctor in Oncology for the results of the biopsy..... Then the doctor told Rebecca her son Alex had cancer Alex had been diagnosed with a Grade 4 Glioblastoma... a fast growing aggressive brain tumour. They had no idea that it was lurking there, silently getting bigger!



He underwent a 6 week course of radiotherapy and oral chemotherapy (throughout which he dealt with it very well) which finished in February 2017, and in March 2017 he started receiving a higher dose of chemotherapy for a 5 day cycle every 28 days (12 cycles in total). Although he had days where he felt nauseous and tired, he's not letting it get him down, he told me it certainly wasn't going to let it get the better of him that's for sure! The first of his follow-up MRI scans was in April 2017, which showed all was so far so good. In July 2017 Alex had another follow-up MRI scan, this showed treatment related changes (an after effect of the radiotherapy) but all was looking good still.

In September 2017 Alex started getting seizures which were out of the ordinary, slightly different to ones he had experienced before, and was seen by one of his doctors. His 3rd follow-up MRI was brought forward as a result. On the day he was due to start his 7th Chemo cycle we were given the results of the scan. Then to received the devastating news that the cancer had returned in 2 other areas of his brain. It’s in an area that is inoperable and the chemo treatment he was receiving hasn’t worked so he is no longer receiving this. Unfortunately there isn’t any further treatment available and radiotherapy isn’t possible as it’s been less than year since he last received it. At this point there’s not much more that they can do for him now apart from manage his seizures and keep him as well as possible for as long as they can.We’ve been told that we just need to make the most of the time we have now. They don’t know for certain how long he’s got but they have said it’s months and not years. He’s due to turn 14 on January the 4th unfortunately Alex did not make this he passed on Xmas which was devastating for the family Alex was pretty close to a nephew so I’m running Brighton marathon in April in memory of Alex 💚💚 good night Alex 😘

Thank you so much for reading their story, we are now trying to raise as much money as possible for clic Sargent as they have done so much to help and could of not done anymore and it’s our way of giving back 




Anything you can donate will help, thank you so so much xxx