Keeley is 9 years old. When she was 6 months old she was diagnosed with Cystic Fibrosis (CF). CF s a genetic condition in which the lungs and the digestive system becomes clogged with thick sticky mucus. There is no cure for CF and the average life expectancy is 34 years. CF requires a lot of treatment to ease the symptoms and make the condition easier to live with. Treatment can also prevent or reduce longterm damage caused by the infections and other complications.

Keeley’ daily routine is taking antibiotics to treat chest and lung infections. She does physiotheraphy twice a day to help clear mucus from the lungs. She takes numerous bronchodilators a medication that helps expand the airways inside the lungs, making it easier to breathe. She also takes inhaled mucus clearing treatments such as pulmozymed hypertonic saline (a strong salt solution) which isn't the best tasting medication. She requires medication called Creon everytime she eats due to the lack of enzymes produced in her pancreas. this allows the fat to be broken down and helps to digest the food. Because nutrition is so important to a long and high quality life for people with CF, Keeley has to be tube fed every night as a result of nutritional failure. She also has numerous vitamins to take to help keep her bones strong.Keeley has been unwell for a few months which has seen her lung function drop as low as 53% When a CF persons lungs drop to below 30% and stay there they then have to be assessed for a lung transplant so its important to make sure all of her medication is done and try and prevent Keeley from getting and infections from people.

Keeley is such an inspiration to others. She even still managed to play her main part role in the school play even though she was in hospital and on oxygen at the time and with her lung function being low. She also had to sing a solo song which she did without any problems. She has also managed to go up a stage in swimming which again is brilliant when her lung function is so low. She never lets CF stop her from doing what she wants to do.

Keeley has also written a book called 65 roses with her worker. Her worker is in the process of getting a copy of the book printed for Keeley but I would love for her book to be published for others to read.

Keeley wanted to make the video on youtube to help raise awareness for CF due to a number of my cousin’s friends passing away of the disease over the past year alone (the link is below). My cousin has recently been put on the transplant list for some new lungs as well which is another reason to raise awareness. 

 If you have time watch the video link of my daughter trying to raise awareness for cystic fibrosis by promoting her own journey.  The chronicle is also doing a story in a week or so about her.

Thanks for your time reading this message and thank you for donating 💜

Kind Regards

Ashley Bradley

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