Thanks for taking the time to visit my JustGiving page.

Above Is a picture of our God Daughter daisy, from the day she was born, she has had a place in our hearts, such a fun loving little girl, most of you know Daisy's story and about her condition and that the NHS won't fund any research into P.O.R.T .

Daisy has been so brave by undergoing so many tests and operations, we felt that we needed to give support, so we put a date in the diary .

We decided as a family to try and raise awarness and funds, so on the 20th March 2010 we are doing a sponsered walk at Creswell Craggs, We have many family and friends involved in this walk, so I know we are going to have a great day for Daisy. 

Just a little insight in to Daisy's condition

Daisy, is suffering from a rare and serious illness called Chronic Intestine Pseudo Obstruction (CIPs)

This basically means that Daisy has a mystery blockage somewhere inside her intestines that prevents any food from getting through, leaving her in chronic pain.
Therefore, like many other sufferers,  Daisy has become unable to eat anything orally.

There is currently no cure for this, and it can only be managed with drugs to ease the pain and discomfort, and by feeding her intravenously, totally bypassing the entire digestive system. Daisy is currently in Royal London Whitechapel Hospital where she has been for the past 4 weeks, awaiting further treatment

 

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