Lees Bath Half Team Isabel page

Lee Preater is raising money for The SMA Trust

Participants: There is a group of 10 of us competing in the marathon all to raise support and awareness of SMA.

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Vitality Bath Half Marathon 2017 · 12 March 2017 ·

The SMA TrustVerified by JustGiving
RCN 1097765
SMA is a genetic disease that affects motor neurones. 1:40 of us is a carrier and in its most severe form children rarely live beyond 2 – making SMA the leading genetic cause of death in babies and toddlers. The SMA Trust is solely dedicated to funding research into a cure and treatments for SMA

Story

I am running the Bath Half to raise awareness on SMA (Spinal Muscular Atrophy) Simply this means that the nerve cells that work the bodies muscles are broken. My 3 year old niece Isabel has this condition at Type 2. She cannot nor will ever be able to walk and has to rely on a motorised chair to get around. This condition is degenerative so that as she grows she will gradually loose more motor function this can include the ability to swallow and breath. 

The SMA Trust is an organisation that is searching for a cure, Any donations you can give to aid in this no matter how small will be put to good use in saving millions of children every year from this horrible illness. With your help we can SMAsh SMA!!

For more information on this visit http://www.smatrust.org 

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Donation summary

Total
£228.00
+ £49.50 Gift Aid
Online
£218.00
Offline
£10.00

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