Thanks for taking the time to visit my JustGiving page.

Update!

Lily has returned from St.Louis, Missouri, U.S now and has had both SDR performed by Dr.TS Park and PERCS performed by Dr.Matthew Dobbs.

Having successfully raised in the region of £42,000 for both these operations we now focus on the post operative Physiotherapy. Lily will be having both NHS funded and Private funded Physio, personal trainer and swimming which takes care of the 5 session she needs a week to reach her full potential. The cost of this is approximately £100 per week (£5000 per year)  As a minimum Lily will be having these sessions for two years.

The Fundraising will continue over the coming years to finance it.

Thank you for your continued support !

Steve x

Lily is 5 years old, she was born 10 weeks premature and was born with low birth weight, Lily was given facial oxygen at birth and was admitted to the neo natal unit at Doncaster Royal infirmary where she stayed there for 4 weeks.

Lily is diagnosed Cerebral Palsy (spastic diplegia) which means the majority of her problems is with here legs, for those who do not about CP it is put simply small parts of the brain that are damaged which send mixed messages to muscles and in Lily’s case her legs. These mixed messages contract and make the muscles spasm leaving very taught muscles, which impede her movement.

Lily is a truly delightful little girl with a smile to light up the room, she gets on with things and has a determination to do things people to take for granted, it maybe a little unorthodox but never the less she finds a way.

Now the aim of the fundraising is so that Lily has a far better chance to walk unaided, she currently walks with a kaye walker (short distance) and is mainly wheelchair bound. There is a procedure available called selective Dorsal Rhizotomy (SDR)  it was pioneered in St.Louis, United States and is now available in the UK. If you are interested here is the link http://www.scope.org.uk/help-and-information/z-therapies/selective-dorsal-rhizotomy

Lily has been rejected for the operation in the U.K so we applied to St.Louis and recently been accepted . The Cost of the procedure is approx $44,245 (£30K) and $11,900 (£8K) for post operative hamstring and calf muscle lengthening.

Pre and postoperative physiotherapy cost around £50/hour with the post operative lasting around 2 years this would account for £10,000.00

Please give what you can for Lily she deserves the chance.

Thanks again

 Lily's Family x 

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.