Louise Fuller

Louise and Aadarsh attempt to climb Mt Kilimanjaro

Fundraising for Reverse Rett
£1,143
raised of £500 target
by 41 supporters
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Reverse Rett

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RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

Thanks for visiting our team fundraising page for Reverse Rett and Cancer Research UK.

Aadarsh and I with your help are hoping to raise money for two extremely important charities that are very close to our hearts. We will be attempting to climb Mt Kilimanjaro in Tanzania over 6 days from 16-21st January 2016, a trek that I’m not sure either of us are prepared for!

The first charity we have chosen is Reverse Rett.  

An extremely close family friends daughter of Louise's Lily, a gorgeous girl has Rett Syndrome.  Here is her story; 

Until her first birthday, Lily was like any other little girl - happy, loving and desperate to explore the world around her. Then things started to change - she lost her speech and her interest in life. Lily was in pain physically and emotionally and no one could give any answers.

Shortly after her second birthday, Lily was diagnosed with Rett Syndrome. A tiny mutation to a single gene has condemned her to a life of profound disability and total dependence.

Lily is locked inside her body, unable to communicate. There is no doubt that it is one of the cruellest syndromes and, as parents, the hardest thing is knowing that things will get worse. Lily faces the prospect of epilepsy, severe spinal curvature, life-threatening breathing problems, feeding difficulties and attacks of acute anxiety. 

But there is hope. Rett Syndrome has been reversed under laboratory conditions.

Scientists predict that it will be the first curable neurological disorder.

The only thing holding back a cure is money.

Researchers are wholly reliant on private donations from people like you.

As a family we have watched our brave little girl fight with determination each and every day. Please help us to help her.

 For more information about Lily and her Journey with Rett Syndrome please watch this video 

https://vimeo.com/84677189

 

Our second charity is Cancer research. 

 

Both of us have had people close to us affected by cancer.  We also continue to diagnose and treat people with it at work.  We will with your help find a cure for this, one step at a time!  

Thank you very much for your support.

 

Lots of love Louise and Aadarsh xxx




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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£1,142.36
+ £245.00 Gift Aid
Online donations
£1,142.36
Offline donations
£0.00

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